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What is an Astrocytoma?
An astrocytoma is a brain tumor that begins in astrocytes—a type of glial cell that supports nerve cells in the brain. Astrocytomas can be...
What Is
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What is Langerhans Cell Histiocytosis (LCH)?
Langerhans cell histiocytosis (LCH) is a rare disorder in which the body produces an overabundance of Langerhans cells. These cells, which...
What is Lymphoma?
Lymphoma is a cancer of the body’s lymphatic (lymph) system which is essential to the immune system. The lymphatic system is made up of a...
What is Ependymoma?
Ependymoma is a tumor that appears most often in the brain and sometimes in the spinal cord. It is a type of glioma, meaning it starts in...
What is Chronic Myeloid Leukemia (CML)?
Chronic myeloid leukemia (CML) is a type of blood cancer that causes an overproduction of white blood cells. These cells grow abnormally...
Social Security Disability Benefits for Children with Cancer
Navigating a childhood cancer diagnosis is difficult on multiple levels including trying to understand how and if your child qualifies for...
What is Neuroblastoma?
Neuroblastoma is a cancerous tumor that develops in the nervous system of babies and young children. It can also occur, rarely, in...
What is Atypical Teratoid/Rhabdoid Tumor (AT/RT)?
Atypical Teratoid/Rhabdoid Tumor (AT/RT) is a rare and fast-growing tumor that typically originates in the brain and spinal cord. These...
What is Diffuse Intrinsic Pontine Glioma (DIPG)?
Diffuse intrinsic pontine glioma (DIPG) is a brain tumor found in a part of the brain stem—above the back of the neck and connected to the...
What is Medulloblastoma?
Medulloblastoma is a type of brain cancer that’s most commonly found in children. “Medulloblastoma starts in the cerebellum, which is...
What Is
What is an MRI?
MRI stands for Magnetic Resonance Imaging. Having an MRI does not hurt, and it is safe – no radioactivity is present. It may take up to one hour, or, if your child needs an anesthetic, most of the day. An MRI scan provides diagnostic information not available when using plain X-rays, ultrasounds, or CT scans. Using a large magnet, radio waves and a computer, an MRI scanner creates very clear and detailed images of organs and tissues in the body. During the MRI, your child will need to lie very...
What is a CT Scan?
A CT (or CAT) scan is a diagnostic medical imaging procedure that creates three-dimensional images of internal organs, soft tissues, blood vessels and bones. CT stands for Computed Tomography. It provides a more detailed image than a traditional X-ray. Most CT scans take a few seconds, while some may take more than 10 minutes. The CT scanner looks like a giant donut with a sliding bed inside, and your child needs to lie very still during the procedure. It’s important to wear comfortable,...
What is a Blood Transfusion?
A blood transfusion is a routine medical procedure to transfer blood (or a specific component of blood) from one person to another. Blood has several components, including: Red cells that carry oxygen and help remove waste products; White cellsthat help your body fight infections; Plasmais the liquid part of blood; and Plateletshelp blood clot properly. Blood transfusions can save lives. They are a treatment for certain diseases, including blood cancers. Receiving a platelet transfusion is...
What is Charity Navigator?
When you are in the market for a new refrigerator, you ask your neighbors and friends for recommendations, and maybe even consult Consumer Reports to see different ratings. When you want to donate to a charity, how do you decide if the charity will take care of your donation and use your donation to meet its mission? Charity Navigator has been called the Consumer Reports of the nonprofit world. It is the largest charity evaluator in America. Its website attracts more visitors than all other...
What is OSI Connect?
OSI Connect is a free, easy-to-use, invaluable resource for those diagnosed with osteosarcoma Osteosarcoma is a difficult and frightening diagnosis, but you are not alone. You can actually connect with leading sarcoma physician experts for a free consult. Yes, free. Yes, a consult not an email. An actual conversation. Founded by parents who have walked the road you are now on, OSI Connect is a resource they wish they would have had. Diagnosis and relapse are overwhelming. It is impossible to...
What is a Free DIPG Nurse Navigator?
Rally Kid Tyson (Image Above), brain cancer (2016-2020)Tyson was just two and a half years old when he was diagnosed with DIPG You Are Not Alone In Your DIPG / DMG Battle Hearing that your child has cancer is devastating. Hearing that your child has cancer and that it is a DIPG / DMG brain tumor is unfathomable - because in the same sentence you learn there is no known cure for DIPG / DMG. Every time we hear that a kid has received this diagnosis, Rally’s heart breaks. However, for parents who...