What Is

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What Is

What is Langerhans Cell Histiocytosis (LCH)?

What is Langerhans Cell Histiocytosis (LCH)?

Langerhans cell histiocytosis (LCH) is a rare disorder in which the body produces an overabundance of Langerhans cells. These cells, which are also known as histiocytes, are a type of white blood cell that helps the immune system fight off infections. LCH causes too many of these cells to form, ultimately resulting in a buildup in the body. This accumulation of cells then damages organs, forms tumors, and otherwise disrupts normal tissue functions. According to the Histiocytosis Association,...

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What is Lymphoma?

What is Lymphoma?

Lymphoma is a cancer of the body’s lymphatic (lymph) system which is essential to the immune system. The lymphatic system is made up of a type of white blood cells also known as lymphocytes which flow throughout the whole body. These lymphocytes fight infections throughout the body, so when cancerous cells begin to grow they can quickly spread through the entire lymph system. This then makes it difficult for the immune system to work properly. Early symptoms of lymphomas usually begin with a...

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What is Ependymoma?

What is Ependymoma?

Ependymoma is a tumor that appears most often in the brain and sometimes in the spinal cord. It is a type of glioma, meaning it starts in the support cells of the brain. This cancer occurs more frequently in children—accounting for 5-10% of all pediatric brain tumors—but it can also affect adults. Common pediatric subtypes include classic ependymoma, a tumor that most commonly appears in the brain, and anaplastic ependymoma, which tends to spread and has a high chance of recurrence. Each type...

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What is Chronic Myeloid Leukemia (CML)?

What is Chronic Myeloid Leukemia (CML)?

Chronic myeloid leukemia (CML) is a type of blood cancer that causes an overproduction of white blood cells. These cells grow abnormally and can build up in the blood and bone marrow, leaving less room for healthy white and red blood cells as well as platelets. CML is commonly associated with a genetic mutation called the Philadelphia chromosome. While CML is very rare in children, with about 150 pediatric cases in the U.S. each year, it’s often more aggressive in kids than it is in adults....

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What is Ewing Sarcoma?

What is Ewing Sarcoma?

Ewing Sarcoma Defined Ewing sarcoma is a cancerous bone tumor that affects children, adolescent and young adults—usually developing during puberty between the ages of 10 and 20 years old. Approximately 87% of Ewing sarcomas are in the long bone, meaning the arm, thigh, shin and pelvis. On rare occasion, Ewing sarcomas can occur in soft tissue like cartilage or nerves. These are called pPNET tumors and can be found in the nerve tissue in many parts of the body; if a pPNET is found in the chest,...

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Social Security Disability Benefits for Children with Cancer

Social Security Disability Benefits for Children with Cancer

Navigating a childhood cancer diagnosis is difficult on multiple levels including trying to understand how and if your child qualifies for social security disability benefits. This article was written by the Outreach Team at Disability Benefits Help with our Rally Families in mind. Disability Benefits provide information about different disability benefits and the application process. How a Child with Cancer Can Qualify for Social Security Disability Benefits Cancer can be a devastating...

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