Advocacy

Dean’s Reflections – August 2021

Dean’s Reflections – August 2021

Hi Friends, Can you believe the kids are already back in school?  Summer flew by! It is great to see some normalcy returning. I mean, who wants to miss another season of college football? I’ll be honest: this summer was a rough patch with our Rally Kids. Too many relapses and too many kids earning their angel wings. But, there was great news too! Rally Kids finishing treatment and ringing the bell, some moving onto survivorship clinic and plenty of Rally Kids graduating from high school and headed to college. Even wedding bells rang—so sweet. The end of summer means Childhood Cancer Awareness Month is almost here! Fasten your seat belts. Below is a link to a blog that is All Things September. #GOLDSTRONG™ is quickly becoming the universal battle cry of the childhood cancer community. Please feel free to use #GOLDSTRONG in September and all year long. DRUM ROLL, PLEASE! As you know,...

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Dean’s Reflections – June 2021

Dean’s Reflections – June 2021

Hi Friends, The Rally Team came to me with an idea. And you know at Rally, if there is one thing we like, it is new ideas! They wanted to do a quarterly newsletter that would be concise and let Rally, our community as a whole, know what was happening. They asked me if they could call it Dean’s Reflections. I personally think Rally Reflections would have been better, but I finally agreed. So welcome to the first Dean’s Reflections. My first reflection is looking back on 2020 and at the first half of 2021. I honestly have to tell you that I am so proud and humbled by Rally and our amazing community. In the middle of a pandemic, your generous support allowed us to support 352 families in 30 states through the hardships of fighting childhood cancer and an international pandemic. Throughout the pandemic, you supported our Department of Defense Medical Research advocacy efforts resulting in...

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“See You On Monday”

“See You On Monday”

A year ago Friday I looked at the Rally staff and said, “See you on Monday.” On Saturday, I spent the day doing research on COVID-19. By Saturday night I was looking up best practices for working from home. On Sunday, I called the leadership team together. Within two hours we had three Zoom accounts and a meeting scheduled with the whole team. I told the Rally team we would be sheltering in place and meeting by Zoom each morning and afternoon. I broke the news that we would not have any of our three scheduled Rally On the Runway events and that the advocacy team would not be going to Washington, D.C. the next week as planned. I shared that we were going to take our inspiration from our Rally families, who adjust and readjust almost on a daily basis without seemingly missing a beat. One team member said, “Childhood cancer isn’t going to take a break because of this pandemic, and neither...

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Two Girls. Three Cancers. One Goal.

Two Girls. Three Cancers. One Goal.

When Rally Kid Peyton was 15, her life was going as planned. She filled her time with rigorous academics, cross country and lacrosse. Nearing the winter of her sophomore year, Peyton’s quick feet began holding out and persistent headaches became unbearable. To Peyton's “utter disappointment” she was diagnosed with two types of leukemia. Peyton soon began a five-month treatment plan, receiving chemotherapy, full-body radiation and a bone marrow transplant. Sadly, she relapsed almost immediately. Peyton had to start treatment again, including a clinical trial and another bone marrow transplant. Her chances of survival were slim. But Peyton—being the strong and relentless fighter she is—persevered through her second battle against leukemia. A year and a half following her initial diagnosis, Peyton was finally cancer-free! I too was a normal kid before cancer. I spent my days dancing at my...

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A Letter from Dean – December 2020

A Letter from Dean – December 2020

Thank you for opening this letter. And for caring about kids fighting cancer. What a year. We can all agree that 2020 is not a year we will soon forget. When the pandemic struck, I thought about the Rally Kids and their families. Their “normal” is living with an immunocompromised child, yet I have always been inspired and in awe of their ability to adjust and readjust. So personally, and at Rally, I took my cue from them. Our theme became adjust and readjust. And that is what we did. Like many businesses and non-profits, when 2020 started, we were projected to have a record-breaking year. In March, when we sheltered in place to flatten the COVID-19 curve, Rally had to cancel four major fundraising events that were projected to raise $1.5 million. In spite of all that was going on, the Rally Board of Directors stayed committed to our mission and voted to award $3.3 million to 59...

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Vincristine: Controlled Distribution

Vincristine: Controlled Distribution

First, thank you to all the families who reached out and shared your children’s stories with us. Thank you, 11 Alive and reporter Kaitlyn Ross in Atlanta and NBC Nightly News, for reporting on the shortage. These news stories along with others are key to raising awareness. Below is a link to the webinar that the Alliance for Childhood Cancer, of which Rally belongs to, and CAC2 with Dr. Peter Adamson, Chair of the Children’s Oncology Group. Here are a few of the key points from the webinar: Pfizer has received vincristine and has made shipments to hospitals. “Controlled Distribution” of vincristine is currently how Pfizer is distributing the drug which means they will hold a buffer so that no hospital runs out of vincristine and no child should miss a necessary treatment. “Recovery” which means Pfizer should have more than enough vincristine to meet market demand are anticipated as...

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Advocacy

Dean’s Reflections – August 2021

Dean’s Reflections – August 2021

Hi Friends, Can you believe the kids are already back in school?  Summer flew by! It is great to see some normalcy returning. I mean, who wants to miss another season of college football? I’ll be honest: this summer was a rough patch with our Rally Kids. Too many relapses and too many kids earning their angel wings. But, there was great news too! Rally Kids finishing treatment and ringing the bell, some moving onto survivorship clinic and plenty of Rally Kids graduating from high school and...

read more
Dean’s Reflections – June 2021

Dean’s Reflections – June 2021

Hi Friends, The Rally Team came to me with an idea. And you know at Rally, if there is one thing we like, it is new ideas! They wanted to do a quarterly newsletter that would be concise and let Rally, our community as a whole, know what was happening. They asked me if they could call it Dean’s Reflections. I personally think Rally Reflections would have been better, but I finally agreed. So welcome to the first Dean’s Reflections. My first reflection is looking back on 2020 and at the first...

read more
“See You On Monday”

“See You On Monday”

A year ago Friday I looked at the Rally staff and said, “See you on Monday.” On Saturday, I spent the day doing research on COVID-19. By Saturday night I was looking up best practices for working from home. On Sunday, I called the leadership team together. Within two hours we had three Zoom accounts and a meeting scheduled with the whole team. I told the Rally team we would be sheltering in place and meeting by Zoom each morning and afternoon. I broke the news that we would not have any of our...

read more
Two Girls. Three Cancers. One Goal.

Two Girls. Three Cancers. One Goal.

When Rally Kid Peyton was 15, her life was going as planned. She filled her time with rigorous academics, cross country and lacrosse. Nearing the winter of her sophomore year, Peyton’s quick feet began holding out and persistent headaches became unbearable. To Peyton's “utter disappointment” she was diagnosed with two types of leukemia. Peyton soon began a five-month treatment plan, receiving chemotherapy, full-body radiation and a bone marrow transplant. Sadly, she relapsed almost...

read more
A Letter from Dean – December 2020

A Letter from Dean – December 2020

Thank you for opening this letter. And for caring about kids fighting cancer. What a year. We can all agree that 2020 is not a year we will soon forget. When the pandemic struck, I thought about the Rally Kids and their families. Their “normal” is living with an immunocompromised child, yet I have always been inspired and in awe of their ability to adjust and readjust. So personally, and at Rally, I took my cue from them. Our theme became adjust and readjust. And that is what we did. Like many...

read more
Vincristine: Controlled Distribution

Vincristine: Controlled Distribution

First, thank you to all the families who reached out and shared your children’s stories with us. Thank you, 11 Alive and reporter Kaitlyn Ross in Atlanta and NBC Nightly News, for reporting on the shortage. These news stories along with others are key to raising awareness. Below is a link to the webinar that the Alliance for Childhood Cancer, of which Rally belongs to, and CAC2 with Dr. Peter Adamson, Chair of the Children’s Oncology Group. Here are a few of the key points from the webinar:...

read more

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