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What is Neuroblastoma?

What is Neuroblastoma?

Neuroblastoma is a type of tumor that forms in the immature nerve cells, or neuroblasts, of children. Neuroblasts begin developing in the fetus and, once the child is born, most of those cells develop normally. However, when they develop atypically, the neuroblasts...

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What is Atypical Teratoid/Rhabdoid Tumor (AT/RT)?

What is Atypical Teratoid/Rhabdoid Tumor (AT/RT)?

Atypical Teratoid/Rhabdoid Tumor (AT/RT) is a rare and fast-growing tumor that typically originates in the brain and spinal cord. These tumors most often occur in the part of the brain called the cerebellum, which controls movement and balance, or in the brain stem,...

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A Letter from Elaine

A Letter from Elaine

It’s been fifteen and a half years since a malignant tumor the size of a grapefruit was removed from the left kidney of our son, James. The feelings of despair and the fear of losing our eleven-year-old constantly gnawed at our hearts. Every time I meet a parent of a...

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What is Diffuse Intrinsic Pontine Glioma (DIPG)?

What is Diffuse Intrinsic Pontine Glioma (DIPG)?

Diffuse intrinsic pontine glioma (DIPG) is a brain tumor found in a part of the brain stem—above the back of the neck and connected to the spine—called the pons. The pons is a vital part of the brain, controlling critical bodily functions like breathing, swallowing,...

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