Did You Know

Rally Kid Keren is a True Advocate

Rally Kid Keren is a True Advocate

“I have been fighting cancer and the side effects since 2017,” shares Rally Kid Keren, who beat rhabdomyosarcoma almost five years before being diagnosed with a completely different cancer, osteosarcoma, in 2021. Dealing with this new cancer diagnosis has been a hard road for Keren and her family. They have found a way of understanding and coping with the harsh treatments and difficult procedures. Just ask for clarification. Keren’s mom Kelly proudly explains, “Keren has really learned how to be an advocate for herself. She is kind but clear when she asks to learn more. This is truly an amazing feat – many people much older than her do not wish, or do not know how to speak up when the doctor or nurse prescribes or implements a certain treatment or process. She really is an impressive role model. Keren empowers us, her parents, as well as other childhood cancer patients, to go ahead and...

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What is Charity Navigator?

What is Charity Navigator?

When you are in the market for a new refrigerator, you ask your neighbors and friends for recommendations, and maybe even consult Consumer Reports to see different ratings. When you want to donate to a charity, how do you decide if the charity will take care of your donation and use your donation to meet its mission? Charity Navigator has been called the Consumer Reports of the nonprofit world. It is the largest charity evaluator in America. Its website attracts more visitors than all other charity rating groups combined.  Charity Navigator is a free service that evaluates the financial health, accountability and transparency of more than 6,000 charities. Rally Foundation for Childhood Cancer Research (Rally) has a perfect score of 100 from Charity Navigator. “Less than one percent of the thousands of charities rated by Charity Navigator have earned perfect scores. We applaud these...

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Osteosarcoma Diagnosis: You Are Not Alone—OSI Connect is Here for You Every Step

Osteosarcoma Diagnosis: You Are Not Alone—OSI Connect is Here for You Every Step

OSI Connect is a free, easy-to-use, invaluable resource for those diagnosed with osteosarcoma Osteosarcoma is a difficult and frightening diagnosis, but you are not alone. You can actually connect with leading sarcoma physician experts for a free consult. Yes, free. Yes, a consult not an email. An actual conversation. Founded by parents who have walked the road you are now on, OSI Connect is a resource they wish they would have had. Diagnosis and relapse are overwhelming. It is impossible to know all the treatment options and questions to ask. OSI Connect is here to help you. You can ask any questions including but not limited to treatment plans, side effects, treatment options and available clinical trials and get advice about how to get the most out of every visit with your treating physician. In addition, the OSI Connect Administrator, sits in on the call and follows up with you...

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DIPG Nurse Navigator Available For Free

DIPG Nurse Navigator Available For Free

Rally Kid Tyson (Image Above), brain cancer (2016-2020)Tyson was just two and a half years old when he was diagnosed with DIPG You Are Not Alone In Your DIPG / DMG Battle Hearing that your child has cancer is devastating. Hearing that your child has cancer and that it is a DIPG / DMG brain tumor is unfathomable - because in the same sentence you learn there is no known cure for DIPG / DMG. Every time we hear that a kid has received this diagnosis, Rally’s heart breaks. However, for parents who face this, we want to share this amazing and free resource. My DIPG Navigator is a unique, no-cost resource for families that gives parents access to one-on-one support from a DIPG / DMG experienced pediatric oncology nurse navigator. Parents can discuss and learn about treatment options, talk about what is happening, learn what to expect, and be connected to leading experts through a...

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Big Data and Childhood Cancer Research

Big Data and Childhood Cancer Research

After being born and living in Turkey my whole life, I came to the US for college to study biological sciences at the University of Chicago. When the laboratory research internship I found for the summer of my first year was cancelled due to COVID-19, I joined a resume match program of my school’s Career Advancement Office, which matched students with employers based on experience and preferences. It was initially through this program that I matched with the Pediatric Cancer Data Commons (PCDC) and started working as their undergraduate summer intern. Later, this internship extended into a part-time job, and I worked with them for nearly a year. Previously in high school, I had worked with a non-profit organization called Cancer Warriors (Kanser Savaşçıları) for more than a year. Through this organization, I had visited the pediatric hematology and oncology departments of an...

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My View Looking Forward

My View Looking Forward

Before cancer, I was never a morning person, but now I love waking up in my home with the entire family under one roof. Most nights, I wake up around 3 am in a panic. Did I dream up this terrible nightmare that my 4-year-old son had cancer and had four inches of his leg cut off? I rush to Gus’s room to check on him and sometimes lay next to him. I tell him I love him to the moon and back and that I am so proud of him. I know these moments are what matter most in life. Right now, it is easy to get sidetracked by arguments over vaccine hesitancy or mask mandates that are still in place. I wish everyone would slow down and view this as an opportunity to help their neighbor. Believe me, it could be so much worse. I have watched a handful of families lose their children to childhood cancer and have been humbled and blessed by their friendship.  We share the common bond of childhood cancer....

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Did You Know

Rally Kid Keren is a True Advocate

Rally Kid Keren is a True Advocate

“I have been fighting cancer and the side effects since 2017,” shares Rally Kid Keren, who beat rhabdomyosarcoma almost five years before being diagnosed with a completely different cancer, osteosarcoma, in 2021. Dealing with this new cancer diagnosis has been a hard road for Keren and her family. They have found a way of understanding and coping with the harsh treatments and difficult procedures. Just ask for clarification. Keren’s mom Kelly proudly explains, “Keren has really learned how to...

read more
What is Charity Navigator?

What is Charity Navigator?

When you are in the market for a new refrigerator, you ask your neighbors and friends for recommendations, and maybe even consult Consumer Reports to see different ratings. When you want to donate to a charity, how do you decide if the charity will take care of your donation and use your donation to meet its mission? Charity Navigator has been called the Consumer Reports of the nonprofit world. It is the largest charity evaluator in America. Its website attracts more visitors than all other...

read more
Osteosarcoma Diagnosis: You Are Not Alone—OSI Connect is Here for You Every Step

Osteosarcoma Diagnosis: You Are Not Alone—OSI Connect is Here for You Every Step

OSI Connect is a free, easy-to-use, invaluable resource for those diagnosed with osteosarcoma Osteosarcoma is a difficult and frightening diagnosis, but you are not alone. You can actually connect with leading sarcoma physician experts for a free consult. Yes, free. Yes, a consult not an email. An actual conversation. Founded by parents who have walked the road you are now on, OSI Connect is a resource they wish they would have had. Diagnosis and relapse are overwhelming. It is impossible to...

read more
DIPG Nurse Navigator Available For Free

DIPG Nurse Navigator Available For Free

Rally Kid Tyson (Image Above), brain cancer (2016-2020)Tyson was just two and a half years old when he was diagnosed with DIPG You Are Not Alone In Your DIPG / DMG Battle Hearing that your child has cancer is devastating. Hearing that your child has cancer and that it is a DIPG / DMG brain tumor is unfathomable - because in the same sentence you learn there is no known cure for DIPG / DMG. Every time we hear that a kid has received this diagnosis, Rally’s heart breaks. However, for parents who...

read more
Big Data and Childhood Cancer Research

Big Data and Childhood Cancer Research

After being born and living in Turkey my whole life, I came to the US for college to study biological sciences at the University of Chicago. When the laboratory research internship I found for the summer of my first year was cancelled due to COVID-19, I joined a resume match program of my school’s Career Advancement Office, which matched students with employers based on experience and preferences. It was initially through this program that I matched with the Pediatric Cancer Data Commons...

read more
My View Looking Forward

My View Looking Forward

Before cancer, I was never a morning person, but now I love waking up in my home with the entire family under one roof. Most nights, I wake up around 3 am in a panic. Did I dream up this terrible nightmare that my 4-year-old son had cancer and had four inches of his leg cut off? I rush to Gus’s room to check on him and sometimes lay next to him. I tell him I love him to the moon and back and that I am so proud of him. I know these moments are what matter most in life. Right now, it is easy to...

read more

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