Families

Pediatric Cancer Dad Discovers a Promising Novel Approach to Wilms’ Tumors

Pediatric Cancer Dad Discovers a Promising Novel Approach to Wilms’ Tumors

Rally Foundation for Childhood Cancer Research (Rally) likes funding outside-the-box ideas and, at times, funding outside-of-the-box researchers: those who we normally not consider as a scientific researcher. Rally is thrilled to share recent developments from an outside-the-box researcher and his study of Wilms’ Tumor. The study emerges from the Children’s Cancer Therapy Development Institute (cc-TDI) in Beaverton, Oregon, in collaboration with Memorial Sloan Kettering Cancer Center. Rally-funded researcher Andy Woods leads the study published in Pediatric Blood & Cancer (link Pediatric Blood & Cancer). But first, who is this outside-of-the-box researcher Andy Woods? Andy Woods is a college-educated stone and tile mason from Montana. He is also a Dad. A dad who heard the devasting words, “Your child has cancer.” When his daughter, Stellablue, was four years old, she was...

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One step at a time, one prayer at a time

One step at a time, one prayer at a time

Normal is defined as conforming to a standard; usual, typical or expected. My name is Sarah Gossling and I am one of Rally Kid Grant’s older sisters. Almost eight years ago, on June 18, 2014, my brother was diagnosed with stage 4 neuroblastoma. My world was shattered. I was about to go into third grade when Grant was diagnosed, and I can remember trying to keep any bit of the normalcy that I had before I learned the word cancer. Before Grant was diagnosed, we were your average family. Four kids (and one addition later on), a whole lot of crazy, and not a care in the world. We loved traveling and going on adventures. We loved to swim together, play together and drive mom and dad crazy. If you caught us on a good day and the house was clean, it wouldn't be long before my brothers Grant and James were making messes. We were just kids being kids. Once Grant was diagnosed, it was harder to...

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My View Looking Forward

My View Looking Forward

Before cancer, I was never a morning person, but now I love waking up in my home with the entire family under one roof. Most nights, I wake up around 3 am in a panic. Did I dream up this terrible nightmare that my 4-year-old son had cancer and had four inches of his leg cut off? I rush to Gus’s room to check on him and sometimes lay next to him. I tell him I love him to the moon and back and that I am so proud of him. I know these moments are what matter most in life. Right now, it is easy to get sidetracked by arguments over vaccine hesitancy or mask mandates that are still in place. I wish everyone would slow down and view this as an opportunity to help their neighbor. Believe me, it could be so much worse. I have watched a handful of families lose their children to childhood cancer and have been humbled and blessed by their friendship.  We share the common bond of childhood cancer....

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Discovering the Reality of Childhood Cancer Treatment

Discovering the Reality of Childhood Cancer Treatment

On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or variant he had. Tumor Sequencing Tumor sequencing is vital, as some variants of Ewing’s sarcomas have poorer outcomes, require specific drugs, and prohibit the use of other drugs. The variant determines the treatment plan. Parents need to know the type of cancer their child is fighting- and if the hospital doesn’t know, parents should demand to have the tumor genetically sequenced. As Dean taught me, “The pathology report is king.” Treatment I could go on and on about the horrors of the treatment Gus endured: scary nights when our son’s heart was beating so fast it seemed as though he was having a heart attack… or beating so slowly that he was unresponsive; the endless needle pokes for blood and platelet transfusions; the horrific bowel movement issues;...

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Gus’ Journey Through Cancer

Gus’ Journey Through Cancer

Gus, my 4-year-old son, was chasing me down the stairs on our way to the basement for our early morning workout. This particular morning, Gus jumped from the stairs onto the floor and took an extra step. Something seemed off, but he didn’t complain after he landed, so we moved on with our day. That afternoon, Gus complained about pain in his leg when his mom, Heidi, picked him up from preschool. But by that evening, he was running around again. The following morning, he was limping, though not complaining, but by night he had a low-grade fever and intense leg pain. DIAGNOSIS The next morning, Heidi took Gus to Urgent Care, and after an X-ray, they were immediately sent to the Children’s Hospital. After 24 long hours and some preliminary imaging, Heidi and I were told by a seasoned diagnostic radiologist that he was 98% sure Gus had a bacterial infection in his leg. The radiologist...

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Cleaning Out the Medicine Cabinet

Cleaning Out the Medicine Cabinet

17 BOTTLES A few weeks ago, I cleaned out the medicine cabinet. That doesn’t sound super exciting, I know, but I threw away 17 bottles of expired chemotherapy and cancer related medications. Last year, these bottles were strung out across our counter at all times ready to be administered to my daughter Lexy every 4-12 hours. A lot has changed in a year. BACK TO “THAT” PLACE I’ve been reminded that fear can strike at any time. I had tried to clean the medicine cabinet after Lexy’s port removal surgery. That was months ago. These bottles were something I just couldn’t get rid of. Like some kind of crazy cancer superstition. But then I noticed seeing the bottles was hard—not only for me, but for Lexy. They took us back to “that” place. A piece of it always stays with you. You never forget seeing your child gasp for air or the sound of the alarm notifying everyone she is in distress. You...

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Families

Pediatric Cancer Dad Discovers a Promising Novel Approach to Wilms’ Tumors

Pediatric Cancer Dad Discovers a Promising Novel Approach to Wilms’ Tumors

Rally Foundation for Childhood Cancer Research (Rally) likes funding outside-the-box ideas and, at times, funding outside-of-the-box researchers: those who we normally not consider as a scientific researcher. Rally is thrilled to share recent developments from an outside-the-box researcher and his study of Wilms’ Tumor. The study emerges from the Children’s Cancer Therapy Development Institute (cc-TDI) in Beaverton, Oregon, in collaboration with Memorial Sloan Kettering Cancer Center....

read more
One step at a time, one prayer at a time

One step at a time, one prayer at a time

Normal is defined as conforming to a standard; usual, typical or expected. My name is Sarah Gossling and I am one of Rally Kid Grant’s older sisters. Almost eight years ago, on June 18, 2014, my brother was diagnosed with stage 4 neuroblastoma. My world was shattered. I was about to go into third grade when Grant was diagnosed, and I can remember trying to keep any bit of the normalcy that I had before I learned the word cancer. Before Grant was diagnosed, we were your average family. Four...

read more
My View Looking Forward

My View Looking Forward

Before cancer, I was never a morning person, but now I love waking up in my home with the entire family under one roof. Most nights, I wake up around 3 am in a panic. Did I dream up this terrible nightmare that my 4-year-old son had cancer and had four inches of his leg cut off? I rush to Gus’s room to check on him and sometimes lay next to him. I tell him I love him to the moon and back and that I am so proud of him. I know these moments are what matter most in life. Right now, it is easy to...

read more
Discovering the Reality of Childhood Cancer Treatment

Discovering the Reality of Childhood Cancer Treatment

On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or variant he had. Tumor Sequencing Tumor sequencing is vital, as some variants of Ewing’s sarcomas have poorer outcomes, require specific drugs, and prohibit the use of other drugs. The variant determines the treatment plan. Parents need to know the type of cancer their child is fighting- and if the hospital doesn’t know, parents should demand to have the tumor...

read more
Gus’ Journey Through Cancer

Gus’ Journey Through Cancer

Gus, my 4-year-old son, was chasing me down the stairs on our way to the basement for our early morning workout. This particular morning, Gus jumped from the stairs onto the floor and took an extra step. Something seemed off, but he didn’t complain after he landed, so we moved on with our day. That afternoon, Gus complained about pain in his leg when his mom, Heidi, picked him up from preschool. But by that evening, he was running around again. The following morning, he was limping, though not...

read more
Cleaning Out the Medicine Cabinet

Cleaning Out the Medicine Cabinet

17 BOTTLES A few weeks ago, I cleaned out the medicine cabinet. That doesn’t sound super exciting, I know, but I threw away 17 bottles of expired chemotherapy and cancer related medications. Last year, these bottles were strung out across our counter at all times ready to be administered to my daughter Lexy every 4-12 hours. A lot has changed in a year. BACK TO “THAT” PLACE I’ve been reminded that fear can strike at any time. I had tried to clean the medicine cabinet after Lexy’s port removal...

read more

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