Kids

My View Looking Forward

My View Looking Forward

Before cancer, I was never a morning person, but now I love waking up in my home with the entire family under one roof. Most nights, I wake up around 3 am in a panic. Did I dream up this terrible nightmare that my 4-year-old son had cancer and had four inches of his leg cut off? I rush to Gus’s room to check on him and sometimes lay next to him. I tell him I love him to the moon and back and that I am so proud of him. I know these moments are what matter most in life. Right now, it is easy to get sidetracked by arguments over vaccine hesitancy or mask mandates that are still in place. I wish everyone would slow down and view this as an opportunity to help their neighbor. Believe me, it could be so much worse. I have watched a handful of families lose their children to childhood cancer and have been humbled and blessed by their friendship.  We share the common bond of childhood cancer....

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Discovering the Reality of Childhood Cancer Treatment

Discovering the Reality of Childhood Cancer Treatment

On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or variant he had. Tumor Sequencing Tumor sequencing is vital, as some variants of Ewing’s sarcomas have poorer outcomes, require specific drugs, and prohibit the use of other drugs. The variant determines the treatment plan. Parents need to know the type of cancer their child is fighting- and if the hospital doesn’t know, parents should demand to have the tumor genetically sequenced. As Dean taught me, “The pathology report is king.” Treatment I could go on and on about the horrors of the treatment Gus endured: scary nights when our son’s heart was beating so fast it seemed as though he was having a heart attack… or beating so slowly that he was unresponsive; the endless needle pokes for blood and platelet transfusions; the horrific bowel movement issues;...

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Rally Kid Lex Dreams of Being a Hematology Oncologist

Rally Kid Lex Dreams of Being a Hematology Oncologist

Why do we Rally for Childhood Cancer Research? The simple answer is #ForTheirFuture. When we fund the best and most promising research studies, our deepest hope is that we’ll find better treatments with fewer long-term side effects, and one day, a cure for all childhood cancers. Rally, with your help, gives hope to all of the kids and families who are bravely battling childhood cancer, so they can dream of a future without harmful treatments, endless hospital stays and pain (both mental and physical) that lasts long after the cancer has gone. Rally Kid Lex is one of those children who has always had big dreams for the future, and if you’ve been following along with his story, you probably know that he’s not the type of kid to let cancer get in the way. After being diagnosed with ALL, the most common childhood cancer, Lex and his family knew they had a long battle ahead of them. His...

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How Rally Kid Lex Stays Positive While Battling Cancer During a Global Pandemic

How Rally Kid Lex Stays Positive While Battling Cancer During a Global Pandemic

What’s it like to be battling childhood cancer during a global pandemic? For Rally Kid Lex, who is undergoing treatment for acute lymphoblastic leukemia (ALL), COVID-19 has presented a new set of challenges that no one was expecting. Cancer treatment was already hard enough—now Lex, along with countless other immunocompromised kids, has to take extra precautions to avoid getting sick. Why? Cancer treatment suppresses the body’s immune system, making kids like Lex more vulnerable to catching illnesses and making it more difficult for them to recover as well. These extra precautions haven’t been easy on Lex or his family. “When Lex was first diagnosed, we had the support of the community,” shared Lex’s mom, Ashley. “They would bring us meals and visit Lex, but when COVID hit, all of that stopped because we just didn’t know what was safe and what wasn’t.” The concept of social distancing...

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Rally Kid Keren’s Future Is Bright

Rally Kid Keren’s Future Is Bright

Childhood cancer doesn’t just affect childhood. The effects of fighting cancer can last a lifetime. When you give to Rally, you help kids like Keren continue to thrive—despite challenges they may face after their battle. Throughout her childhood cancer journey, Keren’s personal motto has been “let your light shine.” Keren and her family shared their story with us last December, and we recently checked in to see how things have changed for them over the past year. Now a seventh grader, Keren started a new school this fall. She is very happy with the academic and social environment, and she has even begun learning computer coding! Keren enjoyed swimming competitively prior to cancer. Since finishing treatment and becoming more comfortable with her prosthetic, she has gradually resumed physical activities. She does occasionally struggle with the fit of her prosthetic and injuries from...

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Rally Kids Maylee & Kiki: #FORTHEIRFUTURE Of Friendship

Rally Kids Maylee & Kiki: #FORTHEIRFUTURE Of Friendship

When you give to Rally, you aren’t just funding research—you are funding childhoods. You’re giving kids the chance to experience life, form lasting friendships and shape their futures. Maylee was first diagnosed with acute myeloid leukemia (AML) when she was 3 years old. She underwent seven months of aggressive chemotherapy and remained in remission for two years. Unfortunately, Maylee relapsed and had to endure more harsh treatments. Maylee is now 8 years old and cancer-free, but she struggles with complications from her bone marrow transplant and graft versus host disease. Kiki was only a toddler when she was diagnosed with acute lymphoblastic leukemia (ALL). She was enrolled in a clinical trial with an additional chemotherapy drug, so her treatment lasted longer than the standard two-and-a-half-year protocol. Now just 5 five years old, Kiki is already experiencing treatment-related...

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Recent Posts

Kids

My View Looking Forward

My View Looking Forward

Before cancer, I was never a morning person, but now I love waking up in my home with the entire family under one roof. Most nights, I wake up around 3 am in a panic. Did I dream up this terrible nightmare that my 4-year-old son had cancer and had four inches of his leg cut off? I rush to Gus’s room to check on him and sometimes lay next to him. I tell him I love him to the moon and back and that I am so proud of him. I know these moments are what matter most in life. Right now, it is easy to...

read more
Discovering the Reality of Childhood Cancer Treatment

Discovering the Reality of Childhood Cancer Treatment

On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or variant he had. Tumor Sequencing Tumor sequencing is vital, as some variants of Ewing’s sarcomas have poorer outcomes, require specific drugs, and prohibit the use of other drugs. The variant determines the treatment plan. Parents need to know the type of cancer their child is fighting- and if the hospital doesn’t know, parents should demand to have the tumor...

read more
Rally Kid Lex Dreams of Being a Hematology Oncologist

Rally Kid Lex Dreams of Being a Hematology Oncologist

Why do we Rally for Childhood Cancer Research? The simple answer is #ForTheirFuture. When we fund the best and most promising research studies, our deepest hope is that we’ll find better treatments with fewer long-term side effects, and one day, a cure for all childhood cancers. Rally, with your help, gives hope to all of the kids and families who are bravely battling childhood cancer, so they can dream of a future without harmful treatments, endless hospital stays and pain (both mental and...

read more
How Rally Kid Lex Stays Positive While Battling Cancer During a Global Pandemic

How Rally Kid Lex Stays Positive While Battling Cancer During a Global Pandemic

What’s it like to be battling childhood cancer during a global pandemic? For Rally Kid Lex, who is undergoing treatment for acute lymphoblastic leukemia (ALL), COVID-19 has presented a new set of challenges that no one was expecting. Cancer treatment was already hard enough—now Lex, along with countless other immunocompromised kids, has to take extra precautions to avoid getting sick. Why? Cancer treatment suppresses the body’s immune system, making kids like Lex more vulnerable to catching...

read more
Rally Kid Keren’s Future Is Bright

Rally Kid Keren’s Future Is Bright

Childhood cancer doesn’t just affect childhood. The effects of fighting cancer can last a lifetime. When you give to Rally, you help kids like Keren continue to thrive—despite challenges they may face after their battle. Throughout her childhood cancer journey, Keren’s personal motto has been “let your light shine.” Keren and her family shared their story with us last December, and we recently checked in to see how things have changed for them over the past year. Now a seventh grader, Keren...

read more
Rally Kids Maylee & Kiki: #FORTHEIRFUTURE Of Friendship

Rally Kids Maylee & Kiki: #FORTHEIRFUTURE Of Friendship

When you give to Rally, you aren’t just funding research—you are funding childhoods. You’re giving kids the chance to experience life, form lasting friendships and shape their futures. Maylee was first diagnosed with acute myeloid leukemia (AML) when she was 3 years old. She underwent seven months of aggressive chemotherapy and remained in remission for two years. Unfortunately, Maylee relapsed and had to endure more harsh treatments. Maylee is now 8 years old and cancer-free, but she...

read more

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