Childhood Cancer

September Childhood Cancer Awareness Month 2021

September Childhood Cancer Awareness Month 2021

This September, we have so many amazing things planned for Childhood Cancer Awareness Month. We are incredibly excited for you to join us as we raise awareness and funds for childhood cancer research. Keep checking back to see what new events are added. All Month: 46 Faces of Rally 46 Faces of Rally honors the 46 children who are diagnosed with cancer every school day. The fundraiser is a powerful way for Rally Kids and their families to use their collective voices. Throughout the month, they help raise critical funds for childhood cancer research for each type of cancer that has affected them personally. Read about these Rally Kids now and donate to their fight against childhood cancer. Georgia-Pacific Clean Up Childhood Cancer Georgia-Pacific is helping to Clean Up Childhood Cancer. Everyone needs toilet paper, paper towels and paper plates. Starting September 1, GP will give 20% off...

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Childhood Cancer Facts

Childhood Cancer Facts

We want to give you the childhood cancer facts, so you know what that inspire us to Rally On towards our goal of finding better treatments with fewer long-term side effects and ultimately cures for kids that have cancer. Childhood Cancer Facts Childhood cancer is the #1 disease killer of kids in America. Every school day, 46 children are diagnosed with cancer. 1 in 5 children diagnosed with cancer in the U.S. will not survive. Approximately 1 in 264 children in the U.S. will develop cancer before turning 20 years old. According to the National Cancer Institute Funded Research Portfolio (NFRP) the average spent on childhood cancer is 4%. NCI spent 5% on childhood cancer research during 2018. Since 2004, only six drugs are approved by the FDA specifically for cancers in children and adolescents compared with hundreds of adult cancer drugs. Side-effects from current treatments are severe...

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Dean’s Reflections – June 2021

Dean’s Reflections – June 2021

Hi Friends, The Rally Team came to me with an idea. And you know at Rally, if there is one thing we like, it is new ideas! They wanted to do a quarterly newsletter that would be concise and let Rally, our community as a whole, know what was happening. They asked me if they could call it Dean’s Reflections. I personally think Rally Reflections would have been better, but I finally agreed. So welcome to the first Dean’s Reflections. My first reflection is looking back on 2020 and at the first half of 2021. I honestly have to tell you that I am so proud and humbled by Rally and our amazing community. In the middle of a pandemic, your generous support allowed us to support 352 families in 30 states through the hardships of fighting childhood cancer and an international pandemic. Throughout the pandemic, you supported our Department of Defense Medical Research advocacy efforts resulting in...

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Big Data and Childhood Cancer Research

Big Data and Childhood Cancer Research

After being born and living in Turkey my whole life, I came to the US for college to study biological sciences at the University of Chicago. When the laboratory research internship I found for the summer of my first year was cancelled due to COVID-19, I joined a resume match program of my school’s Career Advancement Office, which matched students with employers based on experience and preferences. It was initially through this program that I matched with the Pediatric Cancer Data Commons (PCDC) and started working as their undergraduate summer intern. Later, this internship extended into a part-time job, and I worked with them for nearly a year. Previously in high school, I had worked with a non-profit organization called Cancer Warriors (Kanser Savaşçıları) for more than a year. Through this organization, I had visited the pediatric hematology and oncology departments of an...

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My View Looking Forward

My View Looking Forward

Before cancer, I was never a morning person, but now I love waking up in my home with the entire family under one roof. Most nights, I wake up around 3 am in a panic. Did I dream up this terrible nightmare that my 4-year-old son had cancer and had four inches of his leg cut off? I rush to Gus’s room to check on him and sometimes lay next to him. I tell him I love him to the moon and back and that I am so proud of him. I know these moments are what matter most in life. Right now, it is easy to get sidetracked by arguments over vaccine hesitancy or mask mandates that are still in place. I wish everyone would slow down and view this as an opportunity to help their neighbor. Believe me, it could be so much worse. I have watched a handful of families lose their children to childhood cancer and have been humbled and blessed by their friendship.  We share the common bond of childhood cancer....

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Discovering the Reality of Childhood Cancer Treatment

Discovering the Reality of Childhood Cancer Treatment

On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or variant he had. Tumor Sequencing Tumor sequencing is vital, as some variants of Ewing’s sarcomas have poorer outcomes, require specific drugs, and prohibit the use of other drugs. The variant determines the treatment plan. Parents need to know the type of cancer their child is fighting- and if the hospital doesn’t know, parents should demand to have the tumor genetically sequenced. As Dean taught me, “The pathology report is king.” Treatment I could go on and on about the horrors of the treatment Gus endured: scary nights when our son’s heart was beating so fast it seemed as though he was having a heart attack… or beating so slowly that he was unresponsive; the endless needle pokes for blood and platelet transfusions; the horrific bowel movement issues;...

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Childhood Cancer

September Childhood Cancer Awareness Month 2021

September Childhood Cancer Awareness Month 2021

This September, we have so many amazing things planned for Childhood Cancer Awareness Month. We are incredibly excited for you to join us as we raise awareness and funds for childhood cancer research. Keep checking back to see what new events are added. All Month: 46 Faces of Rally 46 Faces of Rally honors the 46 children who are diagnosed with cancer every school day. The fundraiser is a powerful way for Rally Kids and their families to use their collective voices. Throughout the month, they...

read more
Childhood Cancer Facts

Childhood Cancer Facts

We want to give you the childhood cancer facts, so you know what that inspire us to Rally On towards our goal of finding better treatments with fewer long-term side effects and ultimately cures for kids that have cancer. Childhood Cancer Facts Childhood cancer is the #1 disease killer of kids in America. Every school day, 46 children are diagnosed with cancer. 1 in 5 children diagnosed with cancer in the U.S. will not survive. Approximately 1 in 264 children in the U.S. will develop cancer...

read more
Dean’s Reflections – June 2021

Dean’s Reflections – June 2021

Hi Friends, The Rally Team came to me with an idea. And you know at Rally, if there is one thing we like, it is new ideas! They wanted to do a quarterly newsletter that would be concise and let Rally, our community as a whole, know what was happening. They asked me if they could call it Dean’s Reflections. I personally think Rally Reflections would have been better, but I finally agreed. So welcome to the first Dean’s Reflections. My first reflection is looking back on 2020 and at the first...

read more
Big Data and Childhood Cancer Research

Big Data and Childhood Cancer Research

After being born and living in Turkey my whole life, I came to the US for college to study biological sciences at the University of Chicago. When the laboratory research internship I found for the summer of my first year was cancelled due to COVID-19, I joined a resume match program of my school’s Career Advancement Office, which matched students with employers based on experience and preferences. It was initially through this program that I matched with the Pediatric Cancer Data Commons...

read more
My View Looking Forward

My View Looking Forward

Before cancer, I was never a morning person, but now I love waking up in my home with the entire family under one roof. Most nights, I wake up around 3 am in a panic. Did I dream up this terrible nightmare that my 4-year-old son had cancer and had four inches of his leg cut off? I rush to Gus’s room to check on him and sometimes lay next to him. I tell him I love him to the moon and back and that I am so proud of him. I know these moments are what matter most in life. Right now, it is easy to...

read more
Discovering the Reality of Childhood Cancer Treatment

Discovering the Reality of Childhood Cancer Treatment

On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or variant he had. Tumor Sequencing Tumor sequencing is vital, as some variants of Ewing’s sarcomas have poorer outcomes, require specific drugs, and prohibit the use of other drugs. The variant determines the treatment plan. Parents need to know the type of cancer their child is fighting- and if the hospital doesn’t know, parents should demand to have the tumor...

read more

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