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You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly...
It’s scary enough to have your child diagnosed with cancer. But on top of that you hear all these new words and terms, which can be...
You just found out that your child has cancer. And that chemotherapy is part of the treatment plan. Most everyone has heard of...
Radiation therapy is targeted energy used to destroy cancer cells, shrink tumors and/or alleviate certain cancer-related symptoms....
Did your family receive a new diagnosis of ALL? We know that sometimes the best people to talk to during moments such as these are those...
If you’re reading this, someone you know, it might even be your child, may have been diagnosed with acute lymphoblastic leukemia (ALL). As...
MRI stands for Magnetic Resonance Imaging. Having an MRI does not hurt, and it is safe – no radioactivity is present. It may take up to...
A CT (or CAT) scan is a diagnostic medical imaging procedure that creates three-dimensional images of internal organs, soft tissues, blood...
A blood transfusion is a routine medical procedure to transfer blood (or a specific component of blood) from one person to another. Blood...
When you are in the market for a new refrigerator, you ask your neighbors and friends for recommendations, and maybe even consult Consumer...
May of 2013 brought the last dose of chemo for my daughter, Danielle. Back then it was hard to see or even think about what life would be like ten years down the road. Honestly, I wouldn’t even allow myself to look that far ahead. Danielle was diagnosed with high-risk acute lymphoblastic leukemia in January of 2011. When the genetic testing came back on her leukemia about a month after diagnosis, it was not good news. She had all the bad markers and none of the good ones. I chose to focus on...
A few months ago, Rally Mom Tiffany shared with Rally Foundation the outstanding support their family has been receiving from the Brain Tumor Network (BTN) for her son and Rally Kid, Logan: “BTN has been a wonderful resource for our family. They are responsive, knowledgeable and compassionate.” BTN is the largest brain tumor patient support organization of its kind in the U.S. Since 2014, BTN has provided free navigation services to almost 2,000 patients. BTN pediatric brain tumor navigation...
Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous when seeking a second opinion. I did not want my child’s team to feel insulted or think that I didn’t trust them. We LOVE our team, and we know beyond a shadow of a doubt that they love our daughter. And guess what? After receiving the second opinion, the first thing our primary doctor said was “Never feel bad about seeking a second opinion.” In the...
You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own immune cells, specifically the T-cells, to fight specific blood cancers. CAR-T can be a frontline treatment or an option if one or more treatments did not work, meaning the cancer is resistant to treatment, or if the cancer returned. Medical professionals do a blood draw to collect your child’s T-cells, a type of white blood cell. Then the T-cells are sent to...
You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly is bone marrow and what is a bone marrow transplant? Bone marrow is the soft, fatty tissue inside your bones. It creates red and white blood cells, as well as platelets. In addition, bone marrow contains immature blood-forming cells known as hematopoietic stem cells, or HSCs. These stem cells are unspecialized, and they can either remain stem cells or mature...
It’s scary enough to have your child diagnosed with cancer. But on top of that you hear all these new words and terms, which can be overwhelming, such as lumbar puncture or spinal tap. A lumbar procedure is the same thing as a spinal tap. It is a commonly performed procedure to diagnose and manage a variety of diseases including cancer. It is an invasive procedure used to collect the cerebral fluid that surrounds the brain and the spinal cord. A lumbar puncture/spinal tap may also be done to...