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What is Ewing Sarcoma?
Ewing Sarcoma Defined Ewing sarcoma is a cancerous bone tumor that affects children, adolescent and young adults—usually developing during...
What Is
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What is Rhabdomyosarcoma?
Rhabdomyosarcoma (RMS) is a type of soft tissue cancer that most commonly affects children and adolescents. It’s often found in skeletal...
What Is Osteosarcoma?
Osteosarcoma is the most common type of bone cancer in children and adolescents. The tumor often originates in the long bones of the body,...
What is Brain Tissue Donation?
When your child is first diagnosed with brain cancer, you may be asked if you want to donate your child’s tumor tissue. A brain tissue...
What is Rotationplasty?
If your child is diagnosed with osteosarcoma or Ewing sarcoma, both different types of bone cancer, near or around the knee, your doctor...
What Is MIBG?
When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are...
What Is A Second Opinion?
Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous...
What Is CAR-T?
You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own...
What Is a Bone Marrow Transplant?
You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly...
What Is a Lumbar Puncture? What is a Spinal Tap?
It’s scary enough to have your child diagnosed with cancer. But on top of that you hear all these new words and terms, which can be...
What Is
What is Ewing Sarcoma?
Ewing Sarcoma Defined Ewing sarcoma is a cancerous bone tumor that affects children, adolescent and young adults—usually developing during puberty between the ages of 10 and 20 years old. Approximately 87% of Ewing sarcomas are in the long bone, meaning the arm, thigh, shin and pelvis. On rare occasion, Ewing sarcomas can occur in soft tissue like cartilage or nerves. These are called pPNET tumors and can be found in the nerve tissue in many parts of the body; if a pPNET is found in the chest,...
What is Rhabdomyosarcoma?
Rhabdomyosarcoma (RMS) is a type of soft tissue cancer that most commonly affects children and adolescents. It’s often found in skeletal muscle tissue or organs, such as the head and neck area, the urinary system, the reproductive system or appendages like the arms and legs. Rhabdomyosarcoma is part of a larger grouping of cancers called sarcomas which emerge in the body’s connective tissues, like muscles, fat, bones, blood vessels and joints. There are 50 different types of sarcomas. There...
What Is Osteosarcoma?
Osteosarcoma is the most common type of bone cancer in children and adolescents. The tumor often originates in the long bones of the body, and while osteosarcoma frequently starts in a particular bone, it can potentially move to other sites in the body, such as the lungs and other bones. This movement, known as metastasis, makes the disease more difficult to treat. “For patients that present with no evidence of metastatic or disseminated disease, the overall prognosis is about 70-75%,” said...
What is Brain Tissue Donation?
When your child is first diagnosed with brain cancer, you may be asked if you want to donate your child’s tumor tissue. A brain tissue donation is a very personal decision to make, especially at a time when you are confronted with so many decisions and questions. This informative video, “The Journey of Donated Tissue” by our friends at the Swifty Foundation will answer many of the questions you might have. Rally is very supportive of brain tissue donation, and wants to help spread awareness of...
What is Rotationplasty?
If your child is diagnosed with osteosarcoma or Ewing sarcoma, both different types of bone cancer, near or around the knee, your doctor may recommend a procedure called rotationplasty. Other options include amputation and limb salvage surgery. Rotationplasty is a type of autograft that generally provides greater function than a standard above-the-knee amputation or limb salvage surgery. Rotationplasty gives a child a greater chance of participating in competitive sports. Ankle Serves as Knee...
What Is MIBG?
When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are used by healthcare professionals who deal with cancer every day. And it can leave you dazed. But sometimes it helps to use an acronym, for instance MIBG – which stands for metaiodeobenzylguanidine. Just try saying that ten times in a row! MIGB is used to treat neuroblastoma. This clear liquid consists of two materials: metaiodobenzylguanidine, or MIBG, and...