What Is

What Is A Second Opinion?

What Is A Second Opinion?

Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous when seeking a second opinion. I did not want my child’s team to feel insulted or think that I didn’t trust them. We LOVE our team, and we know beyond a shadow of a doubt that they love our daughter. And guess what? After receiving the second opinion, the first thing our primary doctor said was “Never feel bad about seeking a second opinion.” In the immortal words of artist and rapper Macklemore, let’s talk about “What it is. What it does. What it isn’t.” What it is: A second opinion is defined as an independent professional review and assessment of a patient’s illness. A doctor, who is not currently treating your child, carefully reviews the treatment plan and confirms the diagnosis, offers advice, education, and may suggest alternative treatments....

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What Is CAR-T?

What Is CAR-T?

You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own immune cells, specifically the T-cells, to fight specific blood cancers. CAR-T can be a frontline treatment or an option if one or more treatments did not work, meaning the cancer is resistant to treatment, or if the cancer returned. Medical professionals do a blood draw to collect your child’s T-cells, a type of white blood cell. Then the T-cells are sent to a specialized lab where they are changed (genetically modified) into individualized CAR T cells with the goal of making them destroyers of the cancer. CAR stands for chimeric antigen receptor and that is what is attached to your child’s T cells and programmed to attack the cancer cells. It takes two to four weeks to make CAR T cells. The CAR T cells are then infused through an IV into your child...

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What Is a Bone Marrow Transplant?

What Is a Bone Marrow Transplant?

You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly is bone marrow and what is a bone marrow transplant? Bone marrow is the soft, fatty tissue inside your bones. It creates red and white blood cells, as well as platelets. In addition, bone marrow contains immature blood-forming cells known as hematopoietic stem cells, or HSCs. These stem cells are unspecialized, and they can either remain stem cells or mature into different kinds of blood cells. A bone marrow transplant is a medical procedure that replaces bone marrow that has been damaged or destroyed by disease, infection, or chemotherapy. It involves transplanting healthy blood stem cells into the patient so that they can travel to the patient’s bone marrow where they start producing new blood cells and promote growth of new bone marrow. Healthy...

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What Is a Lumbar Puncture? What is a Spinal Tap?

What Is a Lumbar Puncture? What is a Spinal Tap?

It’s scary enough to have your child diagnosed with cancer. But on top of that you hear all these new words and terms, which can be overwhelming, such as lumbar puncture or spinal tap. A lumbar procedure is the same thing as a spinal tap. It is a commonly performed procedure to diagnose and manage a variety of diseases including cancer. It is an invasive procedure used to collect the cerebral fluid that surrounds the brain and the spinal cord. A lumbar puncture/spinal tap may also be done to measure the pressure of the cerebrospinal fluid or to inject medicine, including chemotherapy, directly into the spinal cord and central nervous system. To prepare your child for a lumbar puncture/spinal tap, tell your child what to expect in the hospital and during the procedure. Ask your child’s healthcare team if you can stay with your child during the procedure, and if it’s OK to bring a...

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What is Chemotherapy?

What is Chemotherapy?

You just found out that your child has cancer. And that chemotherapy is part of the treatment plan. Most everyone has heard of chemotherapy. But what is it really? Chemotherapy is any drug used to stop the growth of cancer cells. Chemotherapy is designed to either kill cells or stop them from dividing. Is there just one chemotherapy?  There are many different types of chemotherapy because different chemotherapies treat different types of cancer. Sometimes your child may receive several different types of chemotherapies. How is chemotherapy given to my child?  Chemotherapy may be given by mouth, injection, or by infusion—either an IV or through your child’s port. Or a combination of those. Sometimes it is given topical (on the skin). It depends on the type and stage of the cancer that is being treated. Where and how often is chemotherapy given? Chemotherapy may be given during a...

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What is Radiation?

What is Radiation?

Radiation therapy is targeted energy used to destroy cancer cells, shrink tumors and/or alleviate certain cancer-related symptoms. Radiation therapy uses high-energy X-rays and other forms of radiation therapy to damage the DNA in cancer cells, killing them or depriving them of their ability to grow or divide.  Radiation can be used in several ways: Primary treatment to destroy cancer cells In combination with other treatments to stop the growth of cancer cells Before another treatment to shrink a tumor After another treatment to stop the growth of any remaining cancer cells To relieve symptoms of advanced cancer Radiation therapy does not kill cancer cells immediately. It works for several days and weeks, and during the course of treatment, hopefully damaging the DNA in cancer cells so that they die or are no longer able to reproduce. Radiation therapy is one of the most common cancer...

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What Is

What Is A Second Opinion?

What Is A Second Opinion?

Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous when seeking a second opinion. I did not want my child’s team to feel insulted or think that I didn’t trust them. We LOVE our team, and we know beyond a shadow of a doubt that they love our daughter. And guess what? After receiving the second opinion, the first thing our primary doctor said was “Never feel bad about seeking a second opinion.” In the...

read more
What Is CAR-T?

What Is CAR-T?

You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own immune cells, specifically the T-cells, to fight specific blood cancers. CAR-T can be a frontline treatment or an option if one or more treatments did not work, meaning the cancer is resistant to treatment, or if the cancer returned. Medical professionals do a blood draw to collect your child’s T-cells, a type of white blood cell. Then the T-cells are sent to...

read more
What Is a Bone Marrow Transplant?

What Is a Bone Marrow Transplant?

You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly is bone marrow and what is a bone marrow transplant? Bone marrow is the soft, fatty tissue inside your bones. It creates red and white blood cells, as well as platelets. In addition, bone marrow contains immature blood-forming cells known as hematopoietic stem cells, or HSCs. These stem cells are unspecialized, and they can either remain stem cells or mature...

read more
What Is a Lumbar Puncture? What is a Spinal Tap?

What Is a Lumbar Puncture? What is a Spinal Tap?

It’s scary enough to have your child diagnosed with cancer. But on top of that you hear all these new words and terms, which can be overwhelming, such as lumbar puncture or spinal tap. A lumbar procedure is the same thing as a spinal tap. It is a commonly performed procedure to diagnose and manage a variety of diseases including cancer. It is an invasive procedure used to collect the cerebral fluid that surrounds the brain and the spinal cord. A lumbar puncture/spinal tap may also be done to...

read more
What is Chemotherapy?

What is Chemotherapy?

You just found out that your child has cancer. And that chemotherapy is part of the treatment plan. Most everyone has heard of chemotherapy. But what is it really? Chemotherapy is any drug used to stop the growth of cancer cells. Chemotherapy is designed to either kill cells or stop them from dividing. Is there just one chemotherapy?  There are many different types of chemotherapy because different chemotherapies treat different types of cancer. Sometimes your child may receive several...

read more
What is Radiation?

What is Radiation?

Radiation therapy is targeted energy used to destroy cancer cells, shrink tumors and/or alleviate certain cancer-related symptoms. Radiation therapy uses high-energy X-rays and other forms of radiation therapy to damage the DNA in cancer cells, killing them or depriving them of their ability to grow or divide.  Radiation can be used in several ways: Primary treatment to destroy cancer cells In combination with other treatments to stop the growth of cancer cells Before another treatment to...

read more

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