Advocacy

Vincristine Shortage Call to Action

Vincristine Shortage Call to Action

From Dean Crowe Vincristine is the most commonly used childhood cancer chemotherapy drug, and it works by stopping the cancer cells from separating into two new cells. Its job is to stop the cancer from growing. And now, because of the shortage, kids are being denied vincristine. The Vincristine Shortage: What You Need to Know On Monday, October 14, 2019 the New York Times reported that there was a shortage of vincristine. https://nyti.ms/2MBtKCM The article stated that the shortage was due to a manufacturing issue that the sole supplier of vincristine in the United States, Pfizer Pharmaceuticals, was experiencing.  The FDA and Pfizer both confirmed the manufacturing issue. That same day, Rally heard from parents that their children were denied vincristine.  One child was told that, even after having his port accessed so vincristine could be administered, he would not be getting the...

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Vincristine Shortage – Note To Pediatric Oncologists

Vincristine Shortage – Note To Pediatric Oncologists

Dear Pediatric Oncologists, As I’m sure you’re aware, the vincristine shortage is very real. But what I want you to know is that I am sorry. I know this is hard—hard on the families who can’t get vincristine for their kids, but also hard on you as these precious children’s doctors. My heart breaks for the families and for you. It cannot be easy to look a parent and a child in eye and tell them that they will not be able to get vincristine, the very medicine you told them they needed to save their life. I am sorry. We have failed our children who are fighting cancer, and we have failed you as their doctors. I am still trying to figure out how this has happened in America. The sacrifices you made to become a pediatric oncologist are nothing short of heroic. My son is a first-year neurology resident in Boston, so I’ve seen firsthand (and stand amazed) of what every doctor goes through not...

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Vincristine Shortage – Update and Action

Vincristine Shortage – Update and Action

To the childhood cancer community: As Chair of the Children’s Oncology Group (COG), I am sending this letter to the childhood cancer community to share information we have related to the current vincristine drug shortage, summarize steps we understand are being taken to help resolve the shortage, and to propose an approach that would benefit from an advocacy effort to help address the ongoing challenge of drug shortages that directly impact children with cancer. Vincristine ShortageAt the beginning of October, pharmacists at COG member institutions raised concerns about the ability to obtain vincristine. COG quickly contacted Pfizer/Hospira, now the sole supplier of vincristine in the United States, and was told that Pfizer/Hospira was experiencing a shortage of drug due to a manufacturing delay. (The other supplier of vincristine in the US, Teva Pharmaceuticals, made a “business...

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Your Voice Matters: $6.5 Million in Funding for Cancers in Children, Adolescents and Young Adults

Your Voice Matters: $6.5 Million in Funding for Cancers in Children, Adolescents and Young Adults

By Dean Crowe They say it takes a village. Thank you all for being our village. You called the U.S. Congressional Offices of the DoD Subcommittee Members asking for specific research funding for cancers in children, adolescents and young adults. You signed the letter of support. You visited and wrote personal emails to those offices as cancer fighters, survivors, caretakers, researchers and advocates. You shared your stories. You applied for grants. You served as consumer reviewers. And your voice mattered. It’s hard to put into words how much your collective voices matter, so we’ll put it into numbers instead. At the end of September, $6.5 million was awarded for 11 research grants for cancers in children, adolescents and young adults from the Department of Defense Cancer Peer Review Program. This brings the total awarded in two years to $9.8 million dollars. We are humbled, we are...

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Advocacy

Vincristine Shortage Call to Action

Vincristine Shortage Call to Action

From Dean Crowe Vincristine is the most commonly used childhood cancer chemotherapy drug, and it works by stopping the cancer cells from separating into two new cells. Its job is to stop the cancer from growing. And now, because of the shortage, kids are being denied vincristine. The Vincristine Shortage: What You Need to Know On Monday, October 14, 2019 the New York Times reported that there was a shortage of vincristine. https://nyti.ms/2MBtKCM The article stated that the shortage was due to...

read more
Vincristine Shortage – Note To Pediatric Oncologists

Vincristine Shortage – Note To Pediatric Oncologists

Dear Pediatric Oncologists, As I’m sure you’re aware, the vincristine shortage is very real. But what I want you to know is that I am sorry. I know this is hard—hard on the families who can’t get vincristine for their kids, but also hard on you as these precious children’s doctors. My heart breaks for the families and for you. It cannot be easy to look a parent and a child in eye and tell them that they will not be able to get vincristine, the very medicine you told them they needed to save...

read more
Vincristine Shortage – Update and Action

Vincristine Shortage – Update and Action

To the childhood cancer community: As Chair of the Children’s Oncology Group (COG), I am sending this letter to the childhood cancer community to share information we have related to the current vincristine drug shortage, summarize steps we understand are being taken to help resolve the shortage, and to propose an approach that would benefit from an advocacy effort to help address the ongoing challenge of drug shortages that directly impact children with cancer. Vincristine ShortageAt the...

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Your Voice Matters: $6.5 Million in Funding for Cancers in Children, Adolescents and Young Adults

Your Voice Matters: $6.5 Million in Funding for Cancers in Children, Adolescents and Young Adults

By Dean Crowe They say it takes a village. Thank you all for being our village. You called the U.S. Congressional Offices of the DoD Subcommittee Members asking for specific research funding for cancers in children, adolescents and young adults. You signed the letter of support. You visited and wrote personal emails to those offices as cancer fighters, survivors, caretakers, researchers and advocates. You shared your stories. You applied for grants. You served as consumer reviewers. And your...

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