By: Dean Crowe, Founder & CEO Last year, when COVID-19 hit, I thought about our Rally families and how they handle everything that is...
Adjust, Readjust and Hope
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Childhood Cancer
A Letter from Dean – December 2020
Thank you for opening this letter. And for caring about kids fighting cancer. What a year. We can all agree that 2020 is not a year we...
Helping Childhood Cancer Families Carry The Weight
When you donate to Rally, you fund much-needed childhood cancer research—but there’s more to it. Childhood cancer changes EVERYTHING. It...
Rally Kids Maylee & Kiki: #FORTHEIRFUTURE Of Friendship
When you give to Rally, you aren’t just funding research—you are funding childhoods. You’re giving kids the chance to experience life,...
Meet Rally Kid Lex: A Fun-Loving 11-Year-Old Who’s Fighting Blood Cancer
There’s no way around it: Childhood cancer is sneaky, and it happens unexpectedly. Symptoms can be mild and are often confused with other...
A Letter from Elaine
It’s been fifteen and a half years since a malignant tumor the size of a grapefruit was removed from the left kidney of our son, James....
Words of Wisdom from a Brain Tumor Mom
In honor of Brain Tumor Awareness Month, I asked Melissa Mott—one of my favorite Brain Tumor Moms—a few questions. I really enjoy her...
Why I Chose Pediatric Oncology and Research
Rally Researcher and pediatric oncologist Dr. Michael Kinnaman received a Rally Postdoctoral and Clinical Research Fellow Grant. In part...
A Letter from Rally Kid Peyton to Families Battling Cancer
Dear families experiencing childhood cancer and pediatric palliative care doctors, I am a Rally Kid and a first-year student at the...
The Truth About Palliative Care—It’s Better Than You Might Think
For many pediatric cancer patients and their families, palliative care is a beacon of comfort during the extreme discomfort of symptoms,...
Climbing Mt. Kilimanjaro For Kids Fighting Cancer
I sometimes find myself wondering what it must feel like to be a kid who gets the devastating news that he or she has cancer. Throughout...
Vincristine: Controlled Distribution
First, thank you to all the families who reached out and shared your children’s stories with us. Thank you, 11 Alive and reporter Kaitlyn...
Vincristine Shortage Call to Action
From Dean Crowe Vincristine is the most commonly used childhood cancer chemotherapy drug, and it works by stopping the cancer cells from...
Vincristine Shortage – Note To Pediatric Oncologists
Dear Pediatric Oncologists, As I’m sure you’re aware, the vincristine shortage is very real. But what I want you to know is that I am...
Vincristine Shortage – Update and Action
To the childhood cancer community: As Chair of the Children’s Oncology Group (COG), I am sending this letter to the childhood cancer...
Childhood Cancer
Social Security Disability Benefits for Children with Cancer
Navigating a childhood cancer diagnosis is difficult on multiple levels including trying to understand how and if your child qualifies for social security disability benefits. This article was written by the Outreach Team at Disability Benefits Help with our Rally Families in mind. Disability Benefits provide information about different disability benefits and the application process. How a Child with Cancer Can Qualify for Social Security Disability Benefits Cancer can be a devastating...
What is Chronic Myeloid Leukemia (CML)?
Chronic myeloid leukemia (CML) is a type of blood cancer that causes an overproduction of white blood cells. These cells grow abnormally and can build up in the blood and bone marrow, leaving less room for healthy white and red blood cells as well as platelets. CML is commonly associated with a genetic mutation called the Philadelphia chromosome. While CML is very rare in children, with about 150 pediatric cases in the U.S. each year, it’s often more aggressive in kids than it is in adults....
What is Neuroblastoma?
Neuroblastoma is a cancerous tumor that develops in the nervous system of babies and young children. It can also occur, rarely, in adolescents. A neuroblastoma tumor often affects immature nerve tissue called neuroblasts. The most common area for neuroblastoma to appear is in the adrenal glands, which sit above the kidneys. Adrenal glands produce hormones that control body functions such as digestion, blood pressure, breathing and heart rate. Neuroblastoma can also begin in other areas of the...
What is Atypical Teratoid/Rhabdoid Tumor (AT/RT)?
Atypical Teratoid/Rhabdoid Tumor (AT/RT) is a rare and fast-growing tumor that typically originates in the brain and spinal cord. These tumors most often occur in the part of the brain called the cerebellum, which controls movement and balance, or in the brain stem, which controls vital functions like breathing and heart rate. AT/RT mainly occurs in children under the age of three, but it can occur in older children and very rarely in adults. AT/RT is found in fewer than 3% of children with...
What is Medulloblastoma?
Medulloblastoma is a type of brain cancer that’s most commonly found in children. “Medulloblastoma starts in the cerebellum, which is located in the back of the brain,” explained Rally-funded Researcher Dr. Jezabel Rodriguez-Blanco, Assistant Professor, Department of Pediatrics at the Medical University of South Carolina. “It is a fast-growing tumor that often compresses the ventricle that brings the protective cerebrospinal fluid to the brain. The cerebellum is the part of the brain that...
What is Diffuse Intrinsic Pontine Glioma (DIPG)?
Diffuse intrinsic pontine glioma (DIPG) is a brain tumor found in a part of the brain stem—above the back of the neck and connected to the spine—called the pons. The pons is a vital part of the brain, controlling critical bodily functions like breathing, swallowing, blood pressure, heart rate, eyesight and balance. DIPG occurs almost exclusively in children; most often between the ages of four and 11. DIPG accounts for roughly 10-15% of all brain tumors in children. These tumors—called gliomas...