OSI Connect is a free, easy-to-use, invaluable resource for those diagnosed with osteosarcoma Osteosarcoma is a difficult and frightening...
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Childhood Cancer
What is a Free DIPG Nurse Navigator?
Rally Kid Tyson (Image Above), brain cancer (2016-2020)Tyson was just two and a half years old when he was diagnosed with DIPG You Are Not...
Discovering the Reality of Childhood Cancer Treatment
On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or...
What is Big Data and Childhood Cancer Research
After being born and living in Turkey my whole life, I came to the US for college to study biological sciences at the University of...
What is an Astrocytoma?
An astrocytoma is a brain tumor that begins in astrocytes—a type of glial cell that supports nerve cells in the brain. Astrocytomas can be...
What is Langerhans Cell Histiocytosis (LCH)?
Langerhans cell histiocytosis (LCH) is a rare disorder in which the body produces an overabundance of Langerhans cells. These cells, which...
What is Ependymoma?
Ependymoma is a tumor that appears most often in the brain and sometimes in the spinal cord. It is a type of glioma, meaning it starts in...
What is Lymphoma?
Lymphoma is a cancer of the body’s lymphatic (lymph) system which is essential to the immune system. The lymphatic system is made up of a...
What Is the Link Between Down Syndrome and Childhood Cancer?
Let’s begin by explaining Down syndrome Down syndrome (DS) occurs in about one in every 700 births worldwide. There is a small change...
Social Security Disability Benefits for Children with Cancer
Navigating a childhood cancer diagnosis is difficult on multiple levels including trying to understand how and if your child qualifies for...
What is Chronic Myeloid Leukemia (CML)?
Chronic myeloid leukemia (CML) is a type of blood cancer that causes an overproduction of white blood cells. These cells grow abnormally...
What is Neuroblastoma?
Neuroblastoma is a cancerous tumor that develops in the nervous system of babies and young children. It can also occur, rarely, in...
What is Atypical Teratoid/Rhabdoid Tumor (AT/RT)?
Atypical Teratoid/Rhabdoid Tumor (AT/RT) is a rare and fast-growing tumor that typically originates in the brain and spinal cord. These...
What is Medulloblastoma?
Medulloblastoma is a type of brain cancer that’s most commonly found in children. “Medulloblastoma starts in the cerebellum, which is...
What is Diffuse Intrinsic Pontine Glioma (DIPG)?
Diffuse intrinsic pontine glioma (DIPG) is a brain tumor found in a part of the brain stem—above the back of the neck and connected to the...
Childhood Cancer
What Is CAR-T?
You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own immune cells, specifically the T-cells, to fight specific blood cancers. CAR-T can be a frontline treatment or an option if one or more treatments did not work, meaning the cancer is resistant to treatment, or if the cancer returned. Medical professionals do a blood draw to collect your child’s T-cells, a type of white blood cell. Then the T-cells are sent to...
What Is a Lumbar Puncture? What is a Spinal Tap?
It’s scary enough to have your child diagnosed with cancer. But on top of that you hear all these new words and terms, which can be overwhelming, such as lumbar puncture or spinal tap. A lumbar procedure is the same thing as a spinal tap. It is a commonly performed procedure to diagnose and manage a variety of diseases including cancer. It is an invasive procedure used to collect the cerebral fluid that surrounds the brain and the spinal cord. A lumbar puncture/spinal tap may also be done to...
What Is a Bone Marrow Transplant?
You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly is bone marrow and what is a bone marrow transplant? Bone marrow is the soft, fatty tissue inside your bones. It creates red and white blood cells, as well as platelets. In addition, bone marrow contains immature blood-forming cells known as hematopoietic stem cells, or HSCs. These stem cells are unspecialized, and they can either remain stem cells or mature...
What is Chemotherapy?
You just found out that your child has cancer. And that chemotherapy is part of the treatment plan. Most everyone has heard of chemotherapy. But what is it really? Chemotherapy is any drug used to stop the growth of cancer cells. Chemotherapy is designed to either kill cells or stop them from dividing. Is there just one chemotherapy? There are many different types of chemotherapy because different chemotherapies treat different types of cancer. Sometimes your child may receive several...
What is Radiation?
Radiation therapy is targeted energy used to destroy cancer cells, shrink tumors and/or alleviate certain cancer-related symptoms. Radiation therapy uses high-energy X-rays and other forms of radiation therapy to damage the DNA in cancer cells, killing them or depriving them of their ability to grow or divide. Radiation can be used in several ways: Primary treatment to destroy cancer cells In combination with other treatments to stop the growth of cancer cells Before another treatment to...
What is an MRI?
MRI stands for Magnetic Resonance Imaging. Having an MRI does not hurt, and it is safe – no radioactivity is present. It may take up to one hour, or, if your child needs an anesthetic, most of the day. An MRI scan provides diagnostic information not available when using plain X-rays, ultrasounds, or CT scans. Using a large magnet, radio waves and a computer, an MRI scanner creates very clear and detailed images of organs and tissues in the body. During the MRI, your child will need to lie very...