On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or...
Discovering the Reality of Childhood Cancer Treatment
read more
What Is
What is Big Data and Childhood Cancer Research
After being born and living in Turkey my whole life, I came to the US for college to study biological sciences at the University of...
What is an Astrocytoma?
An astrocytoma is a brain tumor that begins in astrocytes—a type of glial cell that supports nerve cells in the brain. Astrocytomas can be...
What is Langerhans Cell Histiocytosis (LCH)?
Langerhans cell histiocytosis (LCH) is a rare disorder in which the body produces an overabundance of Langerhans cells. These cells, which...
What is Ependymoma?
Ependymoma is a tumor that appears most often in the brain and sometimes in the spinal cord. It is a type of glioma, meaning it starts in...
What is Lymphoma?
Lymphoma is a cancer of the body’s lymphatic (lymph) system which is essential to the immune system. The lymphatic system is made up of a...
What Is the Link Between Down Syndrome and Childhood Cancer?
Let’s begin by explaining Down syndrome Down syndrome (DS) occurs in about one in every 700 births worldwide. There is a small change...
Social Security Disability Benefits for Children with Cancer
Navigating a childhood cancer diagnosis is difficult on multiple levels including trying to understand how and if your child qualifies for...
What is Chronic Myeloid Leukemia (CML)?
Chronic myeloid leukemia (CML) is a type of blood cancer that causes an overproduction of white blood cells. These cells grow abnormally...
What is Neuroblastoma?
Neuroblastoma is a cancerous tumor that develops in the nervous system of babies and young children. It can also occur, rarely, in...
What is Atypical Teratoid/Rhabdoid Tumor (AT/RT)?
Atypical Teratoid/Rhabdoid Tumor (AT/RT) is a rare and fast-growing tumor that typically originates in the brain and spinal cord. These...
What is Medulloblastoma?
Medulloblastoma is a type of brain cancer that’s most commonly found in children. “Medulloblastoma starts in the cerebellum, which is...
What is Diffuse Intrinsic Pontine Glioma (DIPG)?
Diffuse intrinsic pontine glioma (DIPG) is a brain tumor found in a part of the brain stem—above the back of the neck and connected to the...
What is a Glioma?
“Glioma” is a general term for a group of tumors that begin in glial cells—the supporting cells of the brain. Gliomas are classified based...
What is Acute Lymphoblastic Leukemia (ALL)?
Acute lymphoblastic leukemia, also called acute lymphocytic leukemia, or ALL for short, is a type of blood cancer that causes bone marrow...
What Is
Discovering the Reality of Childhood Cancer Treatment
On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or variant he had. Tumor Sequencing Tumor sequencing is vital, as some variants of Ewing’s sarcomas have poorer outcomes, require specific drugs, and prohibit the use of other drugs. The variant determines the treatment plan. Parents need to know the type of cancer their child is fighting- and if the hospital doesn’t know, parents should demand to have the tumor...
What is Big Data and Childhood Cancer Research
After being born and living in Turkey my whole life, I came to the US for college to study biological sciences at the University of Chicago. When the laboratory research internship I found for the summer of my first year was cancelled due to COVID-19, I joined a resume match program of my school’s Career Advancement Office, which matched students with employers based on experience and preferences. It was initially through this program that I matched with the Pediatric Cancer Data Commons...
What is an Astrocytoma?
An astrocytoma is a brain tumor that begins in astrocytes—a type of glial cell that supports nerve cells in the brain. Astrocytomas can be benign or malignant and typically occur in the brainstem, cerebellum, cerebrum, hypothalamus or optic nerves. Tumors that start in glial cells are called gliomas and are named for the specific kind of glial cell in which they originate: astrocytes, oligodendrocytes or ependymocytes. Astrocytomas are the most common form of gliomas found in...
What is Langerhans Cell Histiocytosis (LCH)?
Langerhans cell histiocytosis (LCH) is a rare disorder in which the body produces an overabundance of Langerhans cells. These cells, which are also known as histiocytes, are a type of white blood cell that helps the immune system fight off infections. LCH causes too many of these cells to form, ultimately resulting in a buildup in the body. This accumulation of cells then damages organs, forms tumors, and otherwise disrupts normal tissue functions. According to the Histiocytosis Association,...
What is Ependymoma?
Ependymoma is a tumor that appears most often in the brain and sometimes in the spinal cord. It is a type of glioma, meaning it starts in the support cells of the brain. This cancer occurs more frequently in children—accounting for 5-10% of all pediatric brain tumors—but it can also affect adults. Common pediatric subtypes include classic ependymoma, a tumor that most commonly appears in the brain, and anaplastic ependymoma, which tends to spread and has a high chance of recurrence. Each type...
What is Lymphoma?
Lymphoma is a cancer of the body’s lymphatic (lymph) system which is essential to the immune system. The lymphatic system is made up of a type of white blood cells also known as lymphocytes which flow throughout the whole body. These lymphocytes fight infections throughout the body, so when cancerous cells begin to grow they can quickly spread through the entire lymph system. This then makes it difficult for the immune system to work properly. Early symptoms of lymphomas usually begin with a...