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What Is CAR-T?
You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own...
Childhood Cancer
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What Is a Bone Marrow Transplant?
You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly...
What Is a Lumbar Puncture? What is a Spinal Tap?
It’s scary enough to have your child diagnosed with cancer. But on top of that you hear all these new words and terms, which can be...
What is Chemotherapy?
You just found out that your child has cancer. And that chemotherapy is part of the treatment plan. Most everyone has heard of...
What is Radiation?
Radiation therapy is targeted energy used to destroy cancer cells, shrink tumors and/or alleviate certain cancer-related symptoms....
What Would You Tell a Newly Diagnosed ALL Family? | Part 2
Did your family receive a new diagnosis of ALL? We know that sometimes the best people to talk to during moments such as these are those...
Wisdom and Advice from ALL Rally Moms | Part 1
If you’re reading this, someone you know, it might even be your child, may have been diagnosed with acute lymphoblastic leukemia (ALL). As...
What is an MRI?
MRI stands for Magnetic Resonance Imaging. Having an MRI does not hurt, and it is safe – no radioactivity is present. It may take up to...
What is a CT Scan?
A CT (or CAT) scan is a diagnostic medical imaging procedure that creates three-dimensional images of internal organs, soft tissues, blood...
What is a Blood Transfusion?
A blood transfusion is a routine medical procedure to transfer blood (or a specific component of blood) from one person to another. Blood...
Childhood Cancer
What Is MIBG?
When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are used by healthcare professionals who deal with cancer every day. And it can leave you dazed. But sometimes it helps to use an acronym, for instance MIBG – which stands for metaiodeobenzylguanidine. Just try saying that ten times in a row! MIGB is used to treat neuroblastoma. This clear liquid consists of two materials: metaiodobenzylguanidine, or MIBG, and...
What a Difference a Decade Makes
May of 2013 brought the last dose of chemo for my daughter, Danielle. Back then it was hard to see or even think about what life would be like ten years down the road. Honestly, I wouldn’t even allow myself to look that far ahead. Danielle was diagnosed with high-risk acute lymphoblastic leukemia in January of 2011. When the genetic testing came back on her leukemia about a month after diagnosis, it was not good news. She had all the bad markers and none of the good ones. I chose to focus on...
Brain Tumor Network Guides Patients and Empowers Care
A few months ago, Rally Mom Tiffany shared with Rally Foundation the outstanding support their family has been receiving from the Brain Tumor Network (BTN) for her son and Rally Kid, Logan: “BTN has been a wonderful resource for our family. They are responsive, knowledgeable and compassionate.” BTN is the largest brain tumor patient support organization of its kind in the U.S. Since 2014, BTN has provided free navigation services to almost 2,000 patients. BTN pediatric brain tumor navigation...
What Is A Second Opinion?
Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous when seeking a second opinion. I did not want my child’s team to feel insulted or think that I didn’t trust them. We LOVE our team, and we know beyond a shadow of a doubt that they love our daughter. And guess what? After receiving the second opinion, the first thing our primary doctor said was “Never feel bad about seeking a second opinion.” In the...
What Is CAR-T?
You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own immune cells, specifically the T-cells, to fight specific blood cancers. CAR-T can be a frontline treatment or an option if one or more treatments did not work, meaning the cancer is resistant to treatment, or if the cancer returned. Medical professionals do a blood draw to collect your child’s T-cells, a type of white blood cell. Then the T-cells are sent to...
What Is a Bone Marrow Transplant?
You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly is bone marrow and what is a bone marrow transplant? Bone marrow is the soft, fatty tissue inside your bones. It creates red and white blood cells, as well as platelets. In addition, bone marrow contains immature blood-forming cells known as hematopoietic stem cells, or HSCs. These stem cells are unspecialized, and they can either remain stem cells or mature...