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What is Brain Tissue Donation?
When your child is first diagnosed with brain cancer, you may be asked if you want to donate your child’s tumor tissue. A brain tissue...
Childhood Cancer
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What is Rotationplasty?
If your child is diagnosed with osteosarcoma or Ewing sarcoma, both different types of bone cancer, near or around the knee, your doctor...
What Is MIBG?
When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are...
What a Difference a Decade Makes
May of 2013 brought the last dose of chemo for my daughter, Danielle. Back then it was hard to see or even think about what life would be...
Brain Tumor Network Guides Patients and Empowers Care
A few months ago, Rally Mom Tiffany shared with Rally Foundation the outstanding support their family has been receiving from the Brain...
What Is A Second Opinion?
Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous...
What Is CAR-T?
You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own...
What Is a Bone Marrow Transplant?
You just learned that your child has to have a bone marrow transplant. It sounds ominous. You have a lot of questions. Like, what exactly...
What Is a Lumbar Puncture? What is a Spinal Tap?
It’s scary enough to have your child diagnosed with cancer. But on top of that you hear all these new words and terms, which can be...
What is Chemotherapy?
You just found out that your child has cancer. And that chemotherapy is part of the treatment plan. Most everyone has heard of...
Childhood Cancer
What is Brain Tissue Donation?
When your child is first diagnosed with brain cancer, you may be asked if you want to donate your child’s tumor tissue. A brain tissue donation is a very personal decision to make, especially at a time when you are confronted with so many decisions and questions. This informative video, “The Journey of Donated Tissue” by our friends at the Swifty Foundation will answer many of the questions you might have. Rally is very supportive of brain tissue donation, and wants to help spread awareness of...
What is Rotationplasty?
If your child is diagnosed with osteosarcoma or Ewing sarcoma, both different types of bone cancer, near or around the knee, your doctor may recommend a procedure called rotationplasty. Other options include amputation and limb salvage surgery. Rotationplasty is a type of autograft that generally provides greater function than a standard above-the-knee amputation or limb salvage surgery. Rotationplasty gives a child a greater chance of participating in competitive sports. Ankle Serves as Knee...
What Is MIBG?
When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are used by healthcare professionals who deal with cancer every day. And it can leave you dazed. But sometimes it helps to use an acronym, for instance MIBG – which stands for metaiodeobenzylguanidine. Just try saying that ten times in a row! MIGB is used to treat neuroblastoma. This clear liquid consists of two materials: metaiodobenzylguanidine, or MIBG, and...
What a Difference a Decade Makes
May of 2013 brought the last dose of chemo for my daughter, Danielle. Back then it was hard to see or even think about what life would be like ten years down the road. Honestly, I wouldn’t even allow myself to look that far ahead. Danielle was diagnosed with high-risk acute lymphoblastic leukemia in January of 2011. When the genetic testing came back on her leukemia about a month after diagnosis, it was not good news. She had all the bad markers and none of the good ones. I chose to focus on...
Brain Tumor Network Guides Patients and Empowers Care
A few months ago, Rally Mom Tiffany shared with Rally Foundation the outstanding support their family has been receiving from the Brain Tumor Network (BTN) for her son and Rally Kid, Logan: “BTN has been a wonderful resource for our family. They are responsive, knowledgeable and compassionate.” BTN is the largest brain tumor patient support organization of its kind in the U.S. Since 2014, BTN has provided free navigation services to almost 2,000 patients. BTN pediatric brain tumor navigation...
What Is A Second Opinion?
Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous when seeking a second opinion. I did not want my child’s team to feel insulted or think that I didn’t trust them. We LOVE our team, and we know beyond a shadow of a doubt that they love our daughter. And guess what? After receiving the second opinion, the first thing our primary doctor said was “Never feel bad about seeking a second opinion.” In the...