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On our diagnosis day, we were told that our four-year-old Gus had Ewing Sarcoma. What doctors didn’t know was the particular type or variant he had. Tumor Sequencing Tumor sequencing is vital, as some variants of Ewing’s sarcomas have poorer outcomes, require specific drugs, and prohibit the use of other drugs. The variant determines the treatment plan. Parents need to know the type of cancer their child is fighting- and if the hospital doesn’t know, parents should demand to have the tumor...
Gus, my 4-year-old son, was chasing me down the stairs on our way to the basement for our early morning workout. This particular morning, Gus jumped from the stairs onto the floor and took an extra step. Something seemed off, but he didn’t complain after he landed, so we moved on with our day. That afternoon, Gus complained about pain in his leg when his mom, Heidi, picked him up from preschool. But by that evening, he was running around again. The following morning, he was limping, though not...
17 BOTTLES A few weeks ago, I cleaned out the medicine cabinet. That doesn’t sound super exciting, I know, but I threw away 17 bottles of expired chemotherapy and cancer-related medications. Last year, these bottles were strung out across our counter at all times, ready to be administered to my daughter, Lexy, every 4-12 hours. A lot changed in a year. BACK TO “THAT” PLACE I was reminded that fear can strike at any time. I had tried to clean the medicine cabinet after Lexy’s port removal...
An astrocytoma is a brain tumor that begins in astrocytes—a type of glial cell that supports nerve cells in the brain. Astrocytomas can be benign or malignant and typically occur in the brainstem, cerebellum, cerebrum, hypothalamus or optic nerves. Tumors that start in glial cells are called gliomas and are named for the specific kind of glial cell in which they originate: astrocytes, oligodendrocytes or ependymocytes. Astrocytomas are the most common form of gliomas found in...
FINDING A HOME IN NURSING For as long as I can remember, I have wanted to work in pediatric oncology and help kids with cancer. When I started my freshman year of college, I had my sights set on becoming a pediatric oncologist. My head was filled with visions of helping little warriors fight big battles. It wasn’t long before I realized those visions and dreams in my head were more focused on the job a nurse does rather than a doctor. So, I found my home in nursing and still dreamed of working...
A year ago Friday I looked at the Rally staff and said, “See you on Monday.” On Saturday, I spent the day doing research on COVID-19. By Saturday night I was looking up best practices for working from home. On Sunday, I called the leadership team together. Within two hours we had three Zoom accounts and a meeting scheduled with the whole team. I told the Rally team we would be sheltering in place and meeting by Zoom each morning and afternoon. I broke the news that we would not have any of our...