Your Voice Matters Now More Than Ever We were so close to an epic year for childhood cancer. We had six bills that were in the end of year budget. But at the ‘ninth’ hour all childhood cancer bills, along with many other bills, were stripped. As Congress reconvenes, your voice matters more than ever. Your members need to hear from you that these bills must pass. The cuts included: Accelerating Kids’ Access to Care ActThis bill would cut through the red tape that prevents children on Medicaid from accessing time-sensitive, life-saving care across state lines. Creating Hope Reauthorization ActThis program incentivized the development of 65 new pediatric drugs. Its funding has expired, leaving critical research stalled and innovation slowed. Gariella Miller Kids First Research Act 2.0 to renew federal funding for a dedicated National Institues of Health program that supports research into...

Hi, my name is Brielle. I’m 8-years-old, and I’ve been fighting cancer for as long as I can remember. I was 4 when I first got sick, and for two years, I went through a lot of treatments. It wasn’t easy, but when it was all done, I finally got to be just a normal kid again. I went back to school, played with my friends and even took dance classes! I loved it. My favorite thing was spending time with my family — we had so much fun together. But then, the cancer came back. I lost my hair again. I had to leave my friends, my home and my family to go to a hospital far away. Most days, I just wish I could be home playing with my siblings or going to school. But instead, I’m in a hospital room, trying to be brave. I don’t want to do this again, but I have to. I’m going to keep fighting, because I believe I can beat this. That’s why I wear a necklace with my motto: #WeFight. It reminds me...

​ Brielle is a bright, beautiful 8-year-old who loves working on craft projects, dancing around the house and surrounding herself with all things pink and purple. Like most kids her age, she dreams of playing with her siblings, going to school and simply being a kid. But instead, Brielle’s dreams have been interrupted by something no child should ever have to endure: cancer. When Brielle was 4 years old, her family’s world turned upside down when she was diagnosed with high-risk neuroblastoma. Two years of intense treatments followed — surgeries, chemotherapy and countless hospital stays. Despite it all, Brielle remained resilient, fighting her way to remission. When she reached the end of her treatment protocol, her family was filled with hope when she rang the bell and was declared cancer-free! For 22 beautiful months, Brielle got to live the life of a normal child again. But just as...

At just 4 years old, Brielle’s life took a turn no child should ever experience. What began as stomach pains and backaches quickly turned into a nightmare for her family. They feared the worst—perhaps arthritis or scoliosis—but nothing could have prepared them for the devastating diagnosis of high-risk Stage 4 neuroblastoma. This news came in 2020, during the pandemic, adding an extra layer of complication to an already overwhelming situation. Brielle’s treatments were grueling—her family had to travel across state lines each time she needed care. And for a little girl who loved all things pink and purple, the loss of her hair was one of the hardest parts. But Brielle, true to her fighting spirit, embraced her journey with courage and grace. Through six rounds of chemotherapy, two bone marrow transplants, twelve rounds of radiation, and six rounds of immunotherapy, she remained...