Searching for Clinical Trials for Blood Cancer? Contact the LLS Clinical Trial Support Center

Searching for Clinical Trials for Blood Cancer? Contact the LLS Clinical Trial Support Center

When your child is diagnosed with leukemia or lymphoma, you want to learn as much as possible regarding treatment plans, side effects, and available clinical trials. Rally Foundation knows that finding the right clinical trial for your child can be overwhelming, and fortunately, The Leukemia & Lymphoma Society (LLS) provides a free service to assist patients and families in their search. “We believe strongly in collaborating with like-minded organizations and have partnered with LLS many times. The free service provided by LLS Clinical Trial Nurse Navigators provides families an expert at finding clinical trials for which your child may qualify,” shares Dean Crowe, Founder and CEO of Rally. “We work one-on-one with you to provide personalized assistance throughout the entire clinical trial process,” says Leah Szumita, Director of the Clinical Trial Support Center at LLS. LLS...

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Dean’s Letter – December 2023

Dean’s Letter – December 2023

Dear Friends, My phone buzzed. I really didn’t want to look. I knew what it would say. Rally Kid Caroline, after fighting brain cancer for 10 years, was now pain free shining brightly in heaven. Caroline shines brightly in our hearts, too. I miss that spunky mature-beyond-her-years kid. She epitomizes Rally’s mission. She spoke at Rally signature events and at corporate sponsor events. Together we advocated in Washington, D.C. for more federal funding for childhood cancer research. Rally Kid Ailani, who is fighting cancer for the sixth time and is currently on a treatment made possible by Rally funding, has also advocated with me in D.C. Her mom is retired from the Navy after more than 20 years of service and her dad is currently serving. I am thrilled to share that our advocacy work with the Department of Defense (DOD) is going well. In the past six years, the DOD Medical Research...

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Rally to the Capitol

Rally to the Capitol

Hi Amazing Advocates, At CureFest we had to pivot because of the weather and had an indoor Rally to the Capitol. We asked more than 190 advocates to give us the top three childhood cancer priorities that they would share with the Biden Cancer Moonshot. We are happy to share the results with you. I had the opportunity to share the results with the Biden Cancer Moonshot last week. They were very interested. They have a strong interest in expediting clinical trials, which is great. Thank you again for sharing your top three priorities for the Biden Moonshot. Your voices matter! Also thank you for all the videos for Gabriella Miller 2.0. We are happy to report that Gabriella Miller 2.0 has been introduced in the House and Senate. Now we are waiting for the House and Senate to vote on the bill. After each bill passes the respective House or Senate, a conference committee will be appointed...

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A Heartfelt Note of Thanks to Clarke and Kevin Byard of the Tennessee Titans

A Heartfelt Note of Thanks to Clarke and Kevin Byard of the Tennessee Titans

Dear Clarke and Kevin, I first had the pleasure of meeting you at our 2017 Rally On the Runway. At that time Jurrell Casey and his wife Ryann were our Honorary Chairs. You had already spent time with our Rally Kids, and Jurrell could see that you were ready to jump on board in a bigger way. Before he left the Titans and went on to play for the Denver Broncos in 2021, you were the ones to whom he knew he could pass the “Rally Torch.” Thus began our good fortune to get to know both of you better and continue to Rally On with the Tennessee Titans for kids with cancer. The awful year of Covid closed down the world and forced Rally to rethink how we could continue to raise awareness and funds for children with cancer. Kevin, you rose to the occasion when we spent a few hours videoing narrations for a virtual Rally On the Runway…it seemed like every time we had a perfect take, the train...

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What is Rotationplasty?

What is Rotationplasty?

If your child is diagnosed with osteosarcoma or Ewing sarcoma, both different types of bone cancer, near or around the knee, your doctor may recommend a procedure called rotationplasty. Other options include amputation and limb salvage surgery. Rotationplasty is a type of autograft that generally provides greater function than a standard above-the-knee amputation or limb salvage surgery. Rotationplasty gives a child a greater chance of participating in competitive sports. Ankle Serves as Knee Joint During this radical operation, the surgeon removes the affected part of the leg including the cancerous tumor near the knee. Then the lower section of the leg (shin bone, ankle and foot) is rotated 180 degrees so that the foot points backwards. The surgeon reattaches that part of the leg to the remaining thigh bone. As a result, the ankle now serves as a replacement knee joint. The patient...

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What Is MIBG?

What Is MIBG?

When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are used by healthcare professionals who deal with cancer every day. And it can leave you dazed. But sometimes it helps to use an acronym, for instance MIBG – which stands for metaiodeobenzylguanidine. Just try saying that ten times in a row! MIGB is used to treat neuroblastoma. This clear liquid consists of two materials: metaiodobenzylguanidine, or MIBG, and I-131, a radioactive material. The MIBG carries the radioactive I-131 specifically to your child’s tumors, where it targets the cancer cells over many weeks. Understanding the MIBG treatment process Before infusion Before your child receives MIBG, oral potassium iodide (also referred to as “SSKI”) is given to your child. This protects the thyroid from I-131. Your child will continue to take this...

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Recent Posts


Searching for Clinical Trials for Blood Cancer? Contact the LLS Clinical Trial Support Center

Searching for Clinical Trials for Blood Cancer? Contact the LLS Clinical Trial Support Center

When your child is diagnosed with leukemia or lymphoma, you want to learn as much as possible regarding treatment plans, side effects, and available clinical trials. Rally Foundation knows that finding the right clinical trial for your child can be overwhelming, and fortunately, The Leukemia & Lymphoma Society (LLS) provides a free service to assist patients and families in their search. “We believe strongly in collaborating with like-minded organizations and have partnered with LLS many...

read more
Dean’s Letter – December 2023

Dean’s Letter – December 2023

Dear Friends, My phone buzzed. I really didn’t want to look. I knew what it would say. Rally Kid Caroline, after fighting brain cancer for 10 years, was now pain free shining brightly in heaven. Caroline shines brightly in our hearts, too. I miss that spunky mature-beyond-her-years kid. She epitomizes Rally’s mission. She spoke at Rally signature events and at corporate sponsor events. Together we advocated in Washington, D.C. for more federal funding for childhood cancer research. Rally Kid...

read more
Rally to the Capitol

Rally to the Capitol

Hi Amazing Advocates, At CureFest we had to pivot because of the weather and had an indoor Rally to the Capitol. We asked more than 190 advocates to give us the top three childhood cancer priorities that they would share with the Biden Cancer Moonshot. We are happy to share the results with you. I had the opportunity to share the results with the Biden Cancer Moonshot last week. They were very interested. They have a strong interest in expediting clinical trials, which is great. Thank you...

read more
A Heartfelt Note of Thanks to Clarke and Kevin Byard of the Tennessee Titans

A Heartfelt Note of Thanks to Clarke and Kevin Byard of the Tennessee Titans

Dear Clarke and Kevin, I first had the pleasure of meeting you at our 2017 Rally On the Runway. At that time Jurrell Casey and his wife Ryann were our Honorary Chairs. You had already spent time with our Rally Kids, and Jurrell could see that you were ready to jump on board in a bigger way. Before he left the Titans and went on to play for the Denver Broncos in 2021, you were the ones to whom he knew he could pass the “Rally Torch.” Thus began our good fortune to get to know both of you better...

read more
What is Rotationplasty?

What is Rotationplasty?

If your child is diagnosed with osteosarcoma or Ewing sarcoma, both different types of bone cancer, near or around the knee, your doctor may recommend a procedure called rotationplasty. Other options include amputation and limb salvage surgery. Rotationplasty is a type of autograft that generally provides greater function than a standard above-the-knee amputation or limb salvage surgery. Rotationplasty gives a child a greater chance of participating in competitive sports. Ankle Serves as Knee...

read more
What Is MIBG?

What Is MIBG?

When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are used by healthcare professionals who deal with cancer every day. And it can leave you dazed. But sometimes it helps to use an acronym, for instance MIBG – which stands for metaiodeobenzylguanidine. Just try saying that ten times in a row! MIGB is used to treat neuroblastoma. This clear liquid consists of two materials: metaiodobenzylguanidine, or MIBG, and...

read more

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