May Is Brain Tumor Awareness Month
May Is Brain Tumor Awareness Month May is recognized as Brain Tumor Awareness Month, a time dedicated to shining a light on one of the most complex and aggressive forms of cancer affecting children. Brain tumors are the leading cause of cancer-related death in kids, yet they remain underfunded compared to other cancers. This month is about more than awareness. It is about urgency. It is about progress. And most importantly, it is about the children and families facing diagnoses that no one should ever have to hear. Why This Matters at Rally At Rally Foundation for Childhood Cancer Research, Brain Tumor Awareness Month is deeply personal. We fund research that pushes boundaries, helping scientists better understand these tumors and develop safer, more effective treatments. Many childhood brain tumors are difficult to treat because of their location and complexity, and current treatments...
What Is Osteosarcoma?
Osteosarcoma is the most common type of bone cancer in children and adolescents. The tumor often originates in the long bones of the body, and while osteosarcoma frequently starts in a particular bone, it can potentially move to other sites in the body, such as the lungs and other bones. This movement, known as metastasis, makes the disease more difficult to treat. “For patients that present with no evidence of metastatic or disseminated disease, the overall prognosis is about 70-75%,” said Jason Yustein, MD, PhD, Director of the Faris D. Virani Ewing Sarcoma Center and Assistant Professor in the Department of Pediatrics, Section of Hematology/Oncology, at Baylor College of Medicine. “Unfortunately, for those patients diagnosed with metastatic disease, the long-term prognosis is only 20-30%, and for those that relapse the expected outcomes can be even worse.” Besides the significantly...
What Is MIBG?
When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are used by healthcare professionals who deal with cancer every day. And it can leave you dazed. But sometimes it helps to use an acronym, for instance MIBG – which stands for metaiodeobenzylguanidine. Just try saying that ten times in a row! MIGB is used to treat neuroblastoma. This clear liquid consists of two materials: metaiodobenzylguanidine, or MIBG, and I-131, a radioactive material. The MIBG carries the radioactive I-131 specifically to your child’s tumors, where it targets the cancer cells over many weeks. Understanding the MIBG treatment process Before infusion Before your child receives MIBG, oral potassium iodide (also referred to as “SSKI”) is given to your child. This protects the thyroid from I-131. Your child will continue to take this...
What is Rotationplasty?
If your child is diagnosed with osteosarcoma or Ewing sarcoma, both different types of bone cancer, near or around the knee, your doctor may recommend a procedure called rotationplasty. Other options include amputation and limb salvage surgery. Rotationplasty is a type of autograft that generally provides greater function than a standard above-the-knee amputation or limb salvage surgery. Rotationplasty gives a child a greater chance of participating in competitive sports. Ankle Serves as Knee Joint During this radical operation, the surgeon removes the affected part of the leg including the cancerous tumor near the knee. Then the lower section of the leg (shin bone, ankle and foot) is rotated 180 degrees so that the foot points backwards. The surgeon reattaches that part of the leg to the remaining thigh bone. As a result, the ankle now serves as a replacement knee joint. The patient...
What Is A Second Opinion?
Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous when seeking a second opinion. I did not want my child’s team to feel insulted or think that I didn’t trust them. We LOVE our team, and we know beyond a shadow of a doubt that they love our daughter. And guess what? After receiving the second opinion, the first thing our primary doctor said was “Never feel bad about seeking a second opinion.” In the immortal words of artist and rapper Macklemore, let’s talk about “What it is. What it does. What it isn’t.” What it is: A second opinion is defined as an independent professional review and assessment of a patient’s illness. A doctor, who is not currently treating your child, carefully reviews the treatment plan and confirms the diagnosis, offers advice, education, and may suggest alternative treatments....
What Is CAR-T?
You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own immune cells, specifically the T-cells, to fight specific blood cancers. CAR-T can be a frontline treatment or an option if one or more treatments did not work, meaning the cancer is resistant to treatment, or if the cancer returned. Medical professionals do a blood draw to collect your child’s T-cells, a type of white blood cell. Then the T-cells are sent to a specialized lab where they are changed (genetically modified) into individualized CAR T cells with the goal of making them destroyers of the cancer. CAR stands for chimeric antigen receptor and that is what is attached to your child’s T cells and programmed to attack the cancer cells. It takes two to four weeks to make CAR T cells. The CAR T cells are then infused through an IV into your child...
May Is Brain Tumor Awareness Month
May Is Brain Tumor Awareness Month May is recognized as Brain Tumor Awareness Month, a time dedicated to shining a light on one of the most complex and aggressive forms of cancer affecting children. Brain tumors are the leading cause of cancer-related death in kids, yet they remain underfunded compared to other cancers. This month is about more than awareness. It is about urgency. It is about progress. And most importantly, it is about the children and families facing diagnoses that no one...
What Is Osteosarcoma?
Osteosarcoma is the most common type of bone cancer in children and adolescents. The tumor often originates in the long bones of the body, and while osteosarcoma frequently starts in a particular bone, it can potentially move to other sites in the body, such as the lungs and other bones. This movement, known as metastasis, makes the disease more difficult to treat. “For patients that present with no evidence of metastatic or disseminated disease, the overall prognosis is about 70-75%,” said...
What Is MIBG?
When your child is diagnosed with cancer, you have to learn a whole new language in just a few days. Terms, phrases, and abbreviations are used by healthcare professionals who deal with cancer every day. And it can leave you dazed. But sometimes it helps to use an acronym, for instance MIBG – which stands for metaiodeobenzylguanidine. Just try saying that ten times in a row! MIGB is used to treat neuroblastoma. This clear liquid consists of two materials: metaiodobenzylguanidine, or MIBG, and...
What is Rotationplasty?
If your child is diagnosed with osteosarcoma or Ewing sarcoma, both different types of bone cancer, near or around the knee, your doctor may recommend a procedure called rotationplasty. Other options include amputation and limb salvage surgery. Rotationplasty is a type of autograft that generally provides greater function than a standard above-the-knee amputation or limb salvage surgery. Rotationplasty gives a child a greater chance of participating in competitive sports. Ankle Serves as Knee...
What Is A Second Opinion?
Hey Mom and Dad, Let’s chat, Cancer Parent to Cancer Parent, about seeking a second opinion. I’ll be the first to admit I was very nervous when seeking a second opinion. I did not want my child’s team to feel insulted or think that I didn’t trust them. We LOVE our team, and we know beyond a shadow of a doubt that they love our daughter. And guess what? After receiving the second opinion, the first thing our primary doctor said was “Never feel bad about seeking a second opinion.” In the...
What Is CAR-T?
You may have heard of CAR T-cell therapy, also called CAR T, but what is it? It is an immunotherapy treatment that uses your child’s own immune cells, specifically the T-cells, to fight specific blood cancers. CAR-T can be a frontline treatment or an option if one or more treatments did not work, meaning the cancer is resistant to treatment, or if the cancer returned. Medical professionals do a blood draw to collect your child’s T-cells, a type of white blood cell. Then the T-cells are sent to...