Five Pediatric Cancer Bills Cut From the 2025 Budget

Your Voice Matters Now More Than Ever

We were so close to an epic year for childhood cancer. We had six bills that were in the end of year budget. But at the ‘ninth’ hour all childhood cancer bills, along with many other bills, were stripped.

As Congress reconvenes, your voice matters more than ever. Your members need to hear from you that these bills must pass.

The cuts included:

1. Accelerating Kids’ Access to Care Act
   This bill would cut through the red tape that prevents children on Medicaid from accessing time-sensitive, life-saving care across state lines.
2. Creating Hope Reauthorization Act
   This program incentivized the development of 65 new pediatric drugs. Its funding has expired, leaving critical research stalled and innovation slowed.
3. Gariella Miller Kids First Research Act 2.0 to renew federal funding for a dedicated National Institues of Health program that supports research into treatments and cures for childhood cancers.
4. Innovation in Pediatric Drugs Act
   This legislation ensures pediatric studies for new treatments are completed promptly, keeping us on track to discover cures that save lives.
5. Give Kids a Chance Act
   One of the most promising opportunities in pediatric cancer research is studying combinations of new cancer drugs. This bill would allow researchers to explore those possibilities, potentially unlocking groundbreaking cures.
6. RARE Act
   By clarifying the Orphan Drug Act, this bill would ensure pediatric research isn’t excluded from newly approved drugs that don’t immediately target children but hold promise for their treatment.

After the budget was passed, thankfully the U.S. Senate approved the re-authorization. Gabriella Miller 2.0.

But the five other bills did not pass. For too long, children with cancer have waited for action. Congress must not ask them to wait any longer. Congress needs to hear from you. Your voice matters.

What can you do to help? We are so glad you asked.

1. Join our advocacy email list.

2. Contact your Representatives.

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