Rally Kid Damian

At three years old, Haydin loved her family and playing in her kitchen. She had already hurdled many things in those three short years. She was born at 29 weeks and spent 107 days in the NICU at Centennial Childrens Hospital. For most of that time the doctors weren’t sure on why and what was causing her to have the issues she was having. She Diagnosed with Beckwith-Wiedemann syndrome at four months old (a month after being discharged) and she started the journey of being proactive in monitoring her for symptoms that are possible with that diagnosis. She had an AFP lab and abdominal scan every three months to make sure they didn’t see anything abnormal. I’d say around two years old there was a cyst spotted on her right kidney. After following it with the ultrasounds it slowly began growing and at three, she had her first MRI. The doctors decided they wanted to go in and remove it to be safe. The day before Valentines she went in to have the cyst removed. The surgeon informed us it was malignant, and they would be removing her kidney. After two hours in surgery, they changed the plan and wanted to save her kidney. With her having a higher chance of recurrence with BWS it was a safer route for her. She was very lucky that it came back as stage one Wilms Tumor and her doctors wanted to be proactive. She had her port placed one week later and she had her first chemotherapy treatment of VinCRIStine and DACTINomycin. She did chemo treatments from February 2022 to August 2022. She was officially cleared and has been in remission since. She is continuously monitored with the AFP blood work, abdominal ultrasound, and lung x-ray. She is a wonderful child and is always so happy. Throughout her life and all the hurdles, she has continued to smile and brave through everything. With being in orthotic brace due to CP, glasses due to vision issues, seizure medications for her seizures, multiple surgeries, and other things she is just so happy and loves life.

 

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