Fund Childhood Cancer Research in Honor of Rally Kid Charley
Fund Childhood Cancer Research in Honor of Rally Kid Charley
Charley’s Cancer Journey
gy floor, away from her comfy crib and sound machine to a dark, cold hospital room, where we would watch our baby get a central line placed and chemo.
We would later learn that Charley had a high-risk form of Leukemia with a “very poor” progno- sis, which led us to a stem cell transplant for her best chance of a cure. The next 6 months were spent in and out of the hospital averaging 28-day stays while Charley underwent high-dose che- mo to achieve remission before getting her stem cell transplant. Despite the 1 in 4 odds, our sil- ver lining was finding out that her then 2 year old brother was a 100% donor match. On January 3rd of last year she received her lifesaving transplant. The next several months were met with many life threatening complications – mucositis (inflammation of the GI tract with sores lining from mouth to the intestines), VOD (liver failure), GVHD (old cells attack the new donor cells), and developing severe drinking and food aversions.
Today, Charley is 2 years old and if you didn’t know her story, you’d likely never guess that she’s already endured more in her little life than many do in an entire lifetime. While we are so happy she is doing well today, the side effects from the treatment were harsh. She has a high likelihood of infertility, which led us to freezing one of her ovaries. She will need to see a cardiologist yearly and still continues to get monthly blood checks to monitor her levels and ensure she remains in remission.
Being a part of Rally is one of the things that helps me sleep at night. Even if I have no control over Charley’s future, I do have a voice and the ability to advocate so that we can foster research that leads to more cures and less toxic treatment for childhood cancer.