2 years ago Ray-Ray quit sleeping…literally!!!! From a normal 13 hours a night to 2-4 hours a night. After a few months we took him to doctor, he sent him for some testing and other specialists. Shortly after he was diagnosed with multiple severe and life threatening illnesses. He has a heart condition Long QT syndrome where he will have consult for pacemaker/defibulator this July, a rare chromosome abnormality, high blood pressure, insomnia, iron deficient anemia, kidney dysfuction, Lymphoblastic Leukemia, and many others. He is restricted from normal activities most kids enjoy like recess, sports, theme parks, outdoors. The testing required for disease specifics and treatment is not covered by his insurance and will cost us over $12,000 (not including) past 2 years of traveling, lodging, vehicle general maintenance, and loss of work hours, time, and now employment. We travel all over our state for different specialists sometimes 3-400 miles away. This could be a life saving test and as of now he is unable to have testing due to funds…

Every child who has been diagnosed with childhood cancer inspires us to Rally On to find better treatments with fewer long-term side effects and, ultimately, cures. Please join us in the fight against childhood cancer by making a donation or setting up your own Rally fundraiser today.

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