My son Nolan was on vacation with me visiting his grandparents in Myrtle Beach, SC. We live in suburb just outside of Hartford, CT. So we were over 1000 miles from home when he was diagnosed. About two weeks prior I had started to notice minor bruises, and he slowly stopped eating. I called his pediatrician before our trip and we both seemed to think he was bruising because he was a 21 month old boy and he was eating very picky because he was a toddler and teething. However, when we landed to see my parents, my dad said Nolan looked terrible. We called the doctor and brought him to a walk-in clinic in Myrtle Beach where he had petichiae. Then we were sent to the Emergency Room and his blood counts said it was clearly leukemia and we were immediately rushed on a two hour ambulance ride to the Medical University of South Carolina in Charleston where he spent 12 days in their oncology unit and was diagnosed with Pre. B. A. L. L.
Nolan went from being a wild, happy child to overnight not eating and being very moody. To say the diagnosis was heart breaking is an understatement. My husband flew down from CT because he was working and we stayed at the Ronald McDonald house until Nolan could get on a Medical Transfer flight back to Connecticut Children’s Medical Center for further treatment. We love our doctors and our hospital. We love our clinic and our nurses. We feel very blessed to have the very best care in our own backyard for our son.
I am taking most of the year off from teaching to take care of Nolan. He turned two on September 30, 2017 and we had a wonderful party. He has been undergoing chemotherapy on a regular basis. After 30 days, he had 0.00% residual disease and was declared in remission. We are lucky that his only side affects are lack of appetite at the moment. However, he still has three more years of chemotherapy and will complete his treatment on November 16, 2020. We are so happy to have an end date in mind but it’s still a very long road for our family. God bless all of our little warriors.