Project Description

Brylie

Brylie was a tiny 4 1/2 year old spitfire, full of life and energy, who was rarely sick and never slowed down. Then, in April, 2014, we found a small lump in her chest area. Little did we know that our IMG_4741-1world was about to change. After several appointments with her pediatrician yielded no results or answers, we were referred to Dr. Julie Glasson at Children’s Healthcare of Atlanta, who ordered an MRI. We then heard news that stopped our world–Brylie had a tumor in her chest wall that they believed to be cancer, and while we were searching for answers, it had grown to an inoperable size. We were admitted shortly thereafter for a port installation, biopsy, and additional tests, which determined that Brylie had Ewing’s Sarcoma.

She started chemotherapy on September 23, 2014, with hopes to shrink the mass in her chest. Induction chemo was complete by the end of that year, and on December 31, 2014, she had an MRI which showed that the mass had vanished. We were ecstatic!

Brylie had surgery on January 23, 2015 to remove a large chunk of her chest wall and rib area, and unfortunately, the final pathology report revealed that microscopic tumor cells were found in the pleura space which separated the rib from the lung. Her oncology team then felt it would be best for her to add radiation into her treatment plan. In March of 2015, we traveled to The University of Florida Proton Center in Jacksonville, Florida, for Brylie to have 28 proton radiation treatments. While in Florida, chemo continued alongside radiation to stay on track., and we returned to Georgia in April.

Brylie is now trying to finish up her chemotherapy treatment at Children’s and hopes to be considered cancer free by September, 2015! We are so proud of how she has dealt with all of her medical issues and her continued positive outlook. She is rarely seen without a smile on her face. She amazes us daily, and are looking forward to clear scans soon!

Brylie loves animals, (particularly dogs and horses), and she likes not only the real live animals, but her choice to toys to play with are small little animal figurines. She loves country music (Luke Bryan is her FAVORITE). While she loves to sing, draw, and read books, she also loves any outdoor activity like swimming, fishing, riding her bike or scooter, camping and going on nature walks.

Rally For

Ewing’s Sarcoma