step-up

Join Rally and hundreds of other asking Congress to #StepUp to Fund Childhood Cancer Research and Co-Sponsor STAR

This week Erin, Rally’s Advocacy Coordinator, and 300 others from across the nation are hitting the Hill in Washington, DC for Childhood Cancer Action Days.  Many other non-profits leaders, medical professionals, parents and friends join Erin to be united as one voice as they speak with members of Congress about the issues surrounding childhood cancer research.  Action Days is sponsored by the Alliance for Childhood Cancer of which Rally is a new member.

Erin and those attending Action Days will have two main asks of our elected officials.  First is for stepuplogoCongress to Step Up and allocate more money for childhood cancer research.  You can help by using your various social media platforms to ask your local congressmen to #StepUp. Tweet, Facebook or Instagram using #StepUp and post away! You could even take a photo of yourself with the attached #StepUp sign or just write it on a piece of paper, it’d be great to take a picture of yourself or your childhood cancer fighter.  As they say, a picture is worth a thousand words.

The second ask is for our elected officials to become co-sponsors of the Childhood Cancer STAR Act.  STAR stands for Childhood Cancer Survivorship, Treatment, Access and Research Act. STAR rolls several initiatives and acts neatly into one—kind of like Neapolitan ice cream.

The highlights are:

  • Maximizing Research through Discovery

o   Comprehensive children’s cancer biorepositiories

o   Ensuring Pediatric Expertise at the National Institutes of Health

  • Availability of Promising Treatments

o   Expanded Access Policy

o   Finalizing Draft Guidance on Expanded Access

  • Maximizing Delivery: Care, Quality of Life, Survivorship and Caregiver Support

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STAR has leading sponsors in both the House and Senate. Now we just need additional supporters from members of the House and Senate to co-sponsor and support STAR.

House Bill Sponsors are Congressman Michael McCaul (R-TX), Congressman Chris Van Hollen (D-MD), Congresswoman Jackie Speier (D-CA) and the Senate Bill Sponsor is Senator Jack Reed (D-RI).

These next few days are important ones.  Retired Congressman Jim Moran (D-VA) said that it is critical that we let our elected officials know that childhood cancer is a priority in this country. All of us must tell them and ensure that they hear us, so that they will do something about it.

Please help us #StepUp and let Congress know that childhood cancer is a national priority.

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